TomR1972
Active member
- Joined
- Mar 25, 2007
- Messages
- 55
- Reason
- PALS
- Country
- US
- State
- Ca
- City
- San Jose
I was referred to Stanford at my request from what is conisdered a really good neuro. He didn't feel it was als, nor does the Neruo from stanford. He feels with all my tests I've had and the symptoms that ALS isn't even in the picture. He said that they can be 99.9% but never 100.
He feels its one of the many virus's that can affect you and take a long time to recover from. He says he sees this a lot and that there shouldn't be anything to worry about.
He gave me the most comprehensive in office neuro exam to date and saw nothing at all to make him even think ALS. He said he is convinced its of a benign nature.
Also he said that in the area there is about 100 new cases diagnosed a year and that he sees probably 1/3 of them. That he is the one who gets assigned possible als patients, so to hear that he thinks I dealing with a benign virus makes my nerves one one-hundreth of a millimeter better. However I still have my doubts but I will wait and see what transpires over time.
I hope this is the end of the als thoughts for me and I hope there are others on here that will get the same diagnosis as me. I may still have this disease and only time will tell but I know I have read the most heartfelt stories on here that I will most certainly never forget. I will alway make this disease one that I contribute towards and fight for in any way possible. Let's hope the brainstorm company findes the cure they are claiming to be close to. I thank everyone for taking the time out to talk with me and make me feel better.
He feels its one of the many virus's that can affect you and take a long time to recover from. He says he sees this a lot and that there shouldn't be anything to worry about.
He gave me the most comprehensive in office neuro exam to date and saw nothing at all to make him even think ALS. He said he is convinced its of a benign nature.
Also he said that in the area there is about 100 new cases diagnosed a year and that he sees probably 1/3 of them. That he is the one who gets assigned possible als patients, so to hear that he thinks I dealing with a benign virus makes my nerves one one-hundreth of a millimeter better. However I still have my doubts but I will wait and see what transpires over time.
I hope this is the end of the als thoughts for me and I hope there are others on here that will get the same diagnosis as me. I may still have this disease and only time will tell but I know I have read the most heartfelt stories on here that I will most certainly never forget. I will alway make this disease one that I contribute towards and fight for in any way possible. Let's hope the brainstorm company findes the cure they are claiming to be close to. I thank everyone for taking the time out to talk with me and make me feel better.