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Wendy Moore and Youtube video

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dbach

Active member
Joined
Jun 18, 2012
Messages
49
Reason
PALS
Diagnosis
05/2012
Country
CA
State
NS
Has anyone else seen the video on Youtube entitled "Woman Miraculously Healed of Incurable ALS (Lou Gehrig's)"? I find this intriguing but don't want to fall victim to false hope. I wonder if she was diagnosed correctly initially? Just thought I'd write and ask for other opinions.
Thanks
Darryl
 

Cricket

Distinguished member
Joined
Feb 10, 2013
Messages
166
Reason
PALS
Diagnosis
07/2011
Country
CA
State
ON
Sorry dbach, false advertisement (in my opinion).

Hope you are doing well! Lots of action happening at Glace Bay on June 23rd I hear :)
 

Nighthawk

Senior member
Joined
Jan 17, 2013
Messages
831
Reason
PALS
Diagnosis
12/2011
Country
US
State
Maryland
I think more likely a misdiagnosis. There are many diseases that mimic ALS when it's on early stages and are hard to identify and differentiate from it.
I know about cases where originally the diagnosis was ALS but, after a while with practically no progression or, very slow progression, they were retested (more EMGs, MRI, spinal tap, muscle biopsy, etc.) and upon these new test results the Neuros concluded that the patient didn't have ALS but something else.

Not saying that...miraculously...someone with ALS, might heal but, those cases are probably one in a million.
What I've seen and it's also been documented is PALS living with the disease longer than 10 years (not many but some).


NH
 
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