4/30/09 -scarlett lugo.
i'm sooooooooo sorry i havnt been on, i knoww its been a longg time but to tell you the truth i was starting to think this website wasn't a good idea..
but to answer some questions,
symptoms..i have weakness in both my legs and hands, my hands stay curled up, and i walk completly diffrent then eveyone else, i've been having some twiching in my legs, i guess thats all..for now.
lets see i've had two emgs (worse thing everrr), so much blood work i can do it myself, i've had a spinal tap or tab?..well yeah..2 muscle biopcy (dont think thats spelled right) on my ankle and thigh, alotttt of mri's, umm i think thats all
no, they're (the doctors) are not 100% sure that it is in fact ALS, so the search continues, but they've ruled everything else out..and highly believe that it is, i think that its because i'm only 16 that there not sure.
i am not on any meds.
more about me, i cant button my own shirt anymore, dont even give me a drink if you havnt opened it, i can't bend over more then 5 seconds without feeling like i just got done running a mile, i sit in the shower, by the end of the school day (3:30) im sooooooooooo tired my body hurts i dont wanna do anything, writing is horriable, my hands start to hurt really bad so the school gave me this thingy to type on its alott easier, my legs always hurt um idk what else.
well yeah thats all for now.
-scarlett