wendya432
Active member
- Joined
- Jul 10, 2013
- Messages
- 75
- Reason
- Learn about ALS
- Country
- US
- State
- mi
- City
- Davison
Too bad, right? After all the testing and appointments and medical this and that. I just needed a break from thinking about "it" for a while. I tried my hardest to just ignore it and go on with my life. It is what it is, right? So far, still no diagnosis, just more wait and see. So what else can I do?
So, ignoring it isn't really that easy. I mean... how do you ignore when your body doesn't work right. But, I tried not to focus on it, gave up on the diagnosis hunt, haven't even been to the neuro in months.
We even got a puppy! 6 months old already when we got him. He's my walking buddy, and just general companion during the day. The kids are all in school and it's nice to have him around. He's 9 months now. I've been taking him for a walk every morning (ok, almost every morning!) since we got him. Hoping and praying that building up some endurance and muscle tone would help. Let me tell you, every day is just has hard as the first day. In fact there are days we skip the walk because my legs are too sore, or too weak. And I've actually noticed I'm progressing more and more. I'm sure it's good for me to use my legs while I can, but there has been no miraculous cure. (darn!)
So I gave in, and made another appointment with my neuro. Have to wait until february for his next available, but nothing is serious. I just know that I'm still progressing. Spasticity is at an all time high. Nothing is getting any better. And I can't just stick my head in the sand and try to pretend it's not there. Even my arms are getting worse, I can hardly pick up my laptop! Just don't have the grip strength anymore.
So I guess I need to find some happy medium... somewhere between focusing on being sick and ignoring it.
I also found something funny... While I was on my little trip to la la land, people assumed that I was feeling better because I wasn't talking about it. I just responded with a generic, no I"m still not well just not talking about it. Even my husband seemed to "forget" that I still have problems. I've had to remind him a few times when he would give me a hard time about taking a nap or not being able to do something (not in a bad way, just mostly in a joking manner) that things are still bad, in fact getting worse.
What a strange way to live with this damn slow disease...
So, ignoring it isn't really that easy. I mean... how do you ignore when your body doesn't work right. But, I tried not to focus on it, gave up on the diagnosis hunt, haven't even been to the neuro in months.
We even got a puppy! 6 months old already when we got him. He's my walking buddy, and just general companion during the day. The kids are all in school and it's nice to have him around. He's 9 months now. I've been taking him for a walk every morning (ok, almost every morning!) since we got him. Hoping and praying that building up some endurance and muscle tone would help. Let me tell you, every day is just has hard as the first day. In fact there are days we skip the walk because my legs are too sore, or too weak. And I've actually noticed I'm progressing more and more. I'm sure it's good for me to use my legs while I can, but there has been no miraculous cure. (darn!)
So I gave in, and made another appointment with my neuro. Have to wait until february for his next available, but nothing is serious. I just know that I'm still progressing. Spasticity is at an all time high. Nothing is getting any better. And I can't just stick my head in the sand and try to pretend it's not there. Even my arms are getting worse, I can hardly pick up my laptop! Just don't have the grip strength anymore.
So I guess I need to find some happy medium... somewhere between focusing on being sick and ignoring it.
I also found something funny... While I was on my little trip to la la land, people assumed that I was feeling better because I wasn't talking about it. I just responded with a generic, no I"m still not well just not talking about it. Even my husband seemed to "forget" that I still have problems. I've had to remind him a few times when he would give me a hard time about taking a nap or not being able to do something (not in a bad way, just mostly in a joking manner) that things are still bad, in fact getting worse.
What a strange way to live with this damn slow disease...