Lookin4answers
New member
- Joined
- Mar 11, 2021
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- City
- Melbourne
Hi,
I'm a father of 4 who had noticeable symptoms start in Jan 2020. I have too many symptoms to list here but the main ones are loss of muscle in the forearms and lower legs (I've also lost hairs on my legs). I've had seizures, 15 brain lesions, incredible joint pain, brain fog, twitches, plus plus plus.... I'm still walking but can only manage about 1km before getting tired and then my entire right arm goes numb.
Been seeing the best neuro in Melbourne since Jan 2020 and still waiting for a clear diagnosis. He is confused between MS and ALS or possibly something completely different.
I'm trying to rule out ALSO by myself, has anyone had this weird symptom... When I get up or move too quickly it's like my joints/bone can move out of place and crack. Happens all over my body in my sleep, arms, spine, legs, neck etc... Thinking this is possibly happening because of a lack of muscle but that is just a thought.
Hope you guys can help.
I'm a father of 4 who had noticeable symptoms start in Jan 2020. I have too many symptoms to list here but the main ones are loss of muscle in the forearms and lower legs (I've also lost hairs on my legs). I've had seizures, 15 brain lesions, incredible joint pain, brain fog, twitches, plus plus plus.... I'm still walking but can only manage about 1km before getting tired and then my entire right arm goes numb.
Been seeing the best neuro in Melbourne since Jan 2020 and still waiting for a clear diagnosis. He is confused between MS and ALS or possibly something completely different.
I'm trying to rule out ALSO by myself, has anyone had this weird symptom... When I get up or move too quickly it's like my joints/bone can move out of place and crack. Happens all over my body in my sleep, arms, spine, legs, neck etc... Thinking this is possibly happening because of a lack of muscle but that is just a thought.
Hope you guys can help.