- Sep 13, 2021
- DX UMND/PLS
For what it's worth, I drove myself crazy googling every little thing that happened to me. I probably still overdo it. I decided that living and loving my family was more important and also that researching things was not making anything better. I'm not saying accept what's happening, I'm too stubborn for that! I talk to my Doctors and keep them aware of what's happening with me but, I trust them to know more than I do. I've found that none of this happens at the speed we want and patience is a lifesaver. If it is ALS/PLS/MND, there is nothing we can do about that and we need to work with that diagnosis and make the best of things. Good luck to you.