Eugene88
New member
- Joined
- Jun 30, 2021
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UA
- State
- DN
- City
- Dnipro
Hi Everyone,
I don't want to bother you with the endless rounds of the questions just wanna share my symptoms and hear what you think maybe anybody experienced something similar...
I'm 33, male. Appr. 3 months ago I started feeling the light 'weakness' on both of my legs. It didn't prevent me from doing regular staff just something I noticed. Then it was getting worse and better (it was kind if erratic). But 4 weeks ago it suddenly got worse. I woke up with terrible weakness in my legs it felt like I can hardly walk. A couple of days later it got slightly better. But I started feeling weakness in my arms. Btw the weakness I feel is in the upper part of my legs and arms only (proximal part)
Then I visited neurologist and she tested me - I have bilateral hyperreflexia (seems like I always had it) muscle strengths ok, no stiffness the to to MRI and EMG
MRI is clean as well as EMG (no spontaneous activities aan staff like that). I did one more EMG a couple of weeks later in other place for second opinion - it's clean as well.
The I visited 2 more Neurologists for the second opinion but they said it doesn't look like ALS - no negative signs (reflexes) strengths is '5' from legs and arms, muscles are not stiff, no clonus. But the symptoms don't go out...
After reading about ALS I got panicked and frustrated and fasciculations came.
Symptoms I experience now: feeling of weakness in the upper part of the legs (the distance I covered before is hard for me now), the same weakness in the arms and shoulders (hard to hold you arms above the level of the shoulders, hard to hold the cup), I can still do the activities like use my door keys, use the knife, tie the shoelaces but my fingers slightly inflexible. However a doctors haven't confirmed the atrophy I see my arms and legs got slimmer. Additionally my chin feels week and got slimmer as well (I can compare it looking at my photo year ago). Also my tongue feels heavy. I don't have a problem with pronouncing the words but it's kind if heavy and numb at the tip. Also when I work the tongue so hard it goes white in the middle but then when I relax it it gets back to normal (I thought that's because it's denervated and the blood doesn't reach some part of it)
I read the article before I posted it but it doesn't make me feel relaxed. The question:
1) does ot sound like the early ALS?
2) does it sound like bulbar outset the problem with the chin and tongue
3) does anybody experience anything similar?
Thanks in advance
I don't want to bother you with the endless rounds of the questions just wanna share my symptoms and hear what you think maybe anybody experienced something similar...
I'm 33, male. Appr. 3 months ago I started feeling the light 'weakness' on both of my legs. It didn't prevent me from doing regular staff just something I noticed. Then it was getting worse and better (it was kind if erratic). But 4 weeks ago it suddenly got worse. I woke up with terrible weakness in my legs it felt like I can hardly walk. A couple of days later it got slightly better. But I started feeling weakness in my arms. Btw the weakness I feel is in the upper part of my legs and arms only (proximal part)
Then I visited neurologist and she tested me - I have bilateral hyperreflexia (seems like I always had it) muscle strengths ok, no stiffness the to to MRI and EMG
MRI is clean as well as EMG (no spontaneous activities aan staff like that). I did one more EMG a couple of weeks later in other place for second opinion - it's clean as well.
The I visited 2 more Neurologists for the second opinion but they said it doesn't look like ALS - no negative signs (reflexes) strengths is '5' from legs and arms, muscles are not stiff, no clonus. But the symptoms don't go out...
After reading about ALS I got panicked and frustrated and fasciculations came.
Symptoms I experience now: feeling of weakness in the upper part of the legs (the distance I covered before is hard for me now), the same weakness in the arms and shoulders (hard to hold you arms above the level of the shoulders, hard to hold the cup), I can still do the activities like use my door keys, use the knife, tie the shoelaces but my fingers slightly inflexible. However a doctors haven't confirmed the atrophy I see my arms and legs got slimmer. Additionally my chin feels week and got slimmer as well (I can compare it looking at my photo year ago). Also my tongue feels heavy. I don't have a problem with pronouncing the words but it's kind if heavy and numb at the tip. Also when I work the tongue so hard it goes white in the middle but then when I relax it it gets back to normal (I thought that's because it's denervated and the blood doesn't reach some part of it)
I read the article before I posted it but it doesn't make me feel relaxed. The question:
1) does ot sound like the early ALS?
2) does it sound like bulbar outset the problem with the chin and tongue
3) does anybody experience anything similar?
Thanks in advance