I have a very severe Facial muscle weakness. I am having hard time closing my eyes , smiling, squinting or making any kind of facial expression as the muscles will shake/tremble uncontrollably. The tongue fasciculation and jaw trembling with teeth chattering/grinding is the worst and the scary part! I don’t think it’s clonus tho, I think my teeth chattering/grinding is due to my jaw muscles being weak. Like my teeths are naturally grinding and I sometimes wake up to my teeth chattering. Its very uncomfortable every time I speak maybe because of the tongue quivering and facial muscle weakness.Therefore I have to talk very slowly.
It was probably about half a year ago, that I realized my eye muscles would constantly tremble or shake when I would close it, yes the eyelid or the eye muscle constantly trembles when I try to sleep! for god knows how long it was there for. I didn’t think nothing of it because I knew googling would be the worst idea. The eyelid/eye muscle constantly trembling when closing it trying to sleep. Whenever I try to smile or try to make a facial expression my cheeks/ facial muscles near it will tremble, even when I try to stick my tongue out the muscles near my mouth and lips shakes uncontrollably. I was wondering if anyone living with als has/had this? eye muscle trembling upon closure and facial muscle trembling? I am guessing it’s due to a nerve damage?
I also have a atrophy, it’s visible in the left hand forearm and thenar muscle where the weakness is. About 2,3 people have said that my left hand looked smaller then right, which i can feel it and is visibly noticeable. I am unable to lift objects I use to lift without problem, but the good thing is it’s still functional. However if I try to lift something heavy or grip something my forearm muscle just doesn’t support it due to weakness, it’s the weakness pain discomfort feeling in the forearm muscle where the tendon ends literally where the atrophy is. It happens when I try to make a really hard fist as well and pressing a volume buttons on my phone is a struggle. Where as on the right hand forearm, I don’t get the same weakness feeling while trying to lift the same thing. However when I am working the right hand shoulder pain will literally paralyze the whole right hand for about 2,3 days. I work weekends. I’ll be unable to use my right hand For 2 days until the shoulder pains completely gone.
My one of the first symptoms were in fingers, I don’t know if it’s the tendons, nerves or the bones inside the fingers, I would feel the cracking sensation every time I would stretch my fingers on both hands. It has progressed so much that I don’t even need to stretch it now I feel the bones or tendons rubbing on skin every time I am using my hands. It’s very annoying the cracking joints, finger shoulder every single joints cracks. Where as on the right hand only finger and shoulder joint cracks. So my question is what is the cracking popping rubbing sensation that I feel in my fingers is it the muscle fasiculating causing the bones or tendons to tremble or is it the tendons being lose because of muscle tightness or is it the nerves I just need to know since it’s very annoying.
I am just very convinced at this point, I wasn’t very clear on my symptoms on the thread that I posted a month ago, I mean why are my muscles atrophying and tongue quivering, literally every post that I followed where the muscle weakness followed by atrophy and tongue fasiculating turns out to be this terrible disease. I can’t even sleep good because of my eye muscle trembling non stop it’s crazy nor I can smile. I can’t even do normal exercises like push-ups due to trembling. Fingers trembling, stiff neck finger I literally have all the symptoms. I feel like exercising just makes it hard. I am sorry for the very long post, month and half ago I was referred to neuro by pcp, said they were going to call me in a week it’s been about month and half no one has contacted me just looking for answers in this forum. It’s actually crazy to think that I had a simply teeth chattering and chest tightness 4 years ago. I still have it don’t know how the Chest tightness is related to this disease, 4 clear X-rays and endoscopy...