Riri91
New member
- Joined
- Jan 26, 2021
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- FR
- State
- ID
- City
- Paris
Hello to everyone,
Firstly i'd like to excuse in advance for my poor english, it's not my native tongue. Secondly, it may be my anxiety talking. So maybe i don't have anything to worry about.
I'm a 28years old male, who used to do a lot of boxing, but a bit overweight.
I had some health problems in the last years. It started with the loss of my ability to move arms above my head. At this time, my neurologist told me i may have a facioscapulohumeral muscular dystrophy, but sent me to a renowned center in France. For them, it was just that i had broken my nerve, thus, making the movement impossible. I've been trough a heavy surgery, making my left pectoral linked to my left scapula, to help me rise my arm again. I have not regained a full movement, but it's far better than before, no need to complain here. Better than nothing. Surgery was in 2018.
Let's now fast forward December 2019. I have pain in my neck and near my other scapula. MRI reveals a protruding disc near C6-C7. My rheumatologist told me it's not something to worry much about and some physiotherapy will help me. Did it, and indeed it went better. But at this time, i started to feel weird in my legs. Weak, heavy legs. I don't think i've lost any strength in it, still can do squats, push-ups, but i've notived they are midly shaking when i go down the stairs. But sometimes everything is all right. Also, since yesterday i've some fasciculation in my legs, and on the sides of my torso. When i'm sitting in front of the computer, while i'm working, i can notice my foot feels cold.
Did a blood test, everything is okay, only my CK seems high (321 U/L), whereas they says that an adult male should not exced 200 (i did not do any sports prior the blood test).
I'm seeing a neurologist on Friday. I really don't what it could be. I've been trough a lot of problem regarding my health in the last year. I probably should also mention that i'm actually seeing a therapist because of some problem in my personal life, and i'm feeling really anxious, and sad, in my life, overall.
So that's it. I'd like some inputs from you guys. Don't want to bother anyone, but still, als is somewhere in my mind. I'm afraid.
Edit: Also have stiff in my thigh since yesterday. My mom told me she used to have a lot of blood circulation in the legs when she was younger. But it's more of a woman problem right ? Both of my parent are really anxious about me since i told them, because of my health problem in the past 5 years. They both lost relatives in December and are feeling sad, i don't want to worry them more.
Firstly i'd like to excuse in advance for my poor english, it's not my native tongue. Secondly, it may be my anxiety talking. So maybe i don't have anything to worry about.
I'm a 28years old male, who used to do a lot of boxing, but a bit overweight.
I had some health problems in the last years. It started with the loss of my ability to move arms above my head. At this time, my neurologist told me i may have a facioscapulohumeral muscular dystrophy, but sent me to a renowned center in France. For them, it was just that i had broken my nerve, thus, making the movement impossible. I've been trough a heavy surgery, making my left pectoral linked to my left scapula, to help me rise my arm again. I have not regained a full movement, but it's far better than before, no need to complain here. Better than nothing. Surgery was in 2018.
Let's now fast forward December 2019. I have pain in my neck and near my other scapula. MRI reveals a protruding disc near C6-C7. My rheumatologist told me it's not something to worry much about and some physiotherapy will help me. Did it, and indeed it went better. But at this time, i started to feel weird in my legs. Weak, heavy legs. I don't think i've lost any strength in it, still can do squats, push-ups, but i've notived they are midly shaking when i go down the stairs. But sometimes everything is all right. Also, since yesterday i've some fasciculation in my legs, and on the sides of my torso. When i'm sitting in front of the computer, while i'm working, i can notice my foot feels cold.
Did a blood test, everything is okay, only my CK seems high (321 U/L), whereas they says that an adult male should not exced 200 (i did not do any sports prior the blood test).
I'm seeing a neurologist on Friday. I really don't what it could be. I've been trough a lot of problem regarding my health in the last year. I probably should also mention that i'm actually seeing a therapist because of some problem in my personal life, and i'm feeling really anxious, and sad, in my life, overall.
So that's it. I'd like some inputs from you guys. Don't want to bother anyone, but still, als is somewhere in my mind. I'm afraid.
Edit: Also have stiff in my thigh since yesterday. My mom told me she used to have a lot of blood circulation in the legs when she was younger. But it's more of a woman problem right ? Both of my parent are really anxious about me since i told them, because of my health problem in the past 5 years. They both lost relatives in December and are feeling sad, i don't want to worry them more.