Weakness in both knees, twitching, cramps

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mansliplow

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Hi,

First of all this forum seems like a professionnaly organized community with lots of activity. That alone is a sign that there are very strong people here.

And yes, I read the "READ BEFOR POSTING" sticky post many times but I still have doubts, and although I'm going to have a visit to the neurologist soon, I would really appreciate some feedback from reliable people here.

Symptoms onset: 1 month ago

- sudden slight weakness and instability in both knees at the same time which has gotten more prominent since then. I think they call it "bucklig" knees
- sometimes pain in the knees especially when walking, or strain-like pain in the muscles that connect to the joints
- fasciculations, cramps and hypnic jerks became regular, especially when I sit or rest and they are all over my calves and thighs in both legs, it's like maggots are crawling under my skin (I've had these fasciculations and twitchings and night cramps for a long time, I'd say 6 years at least, plus these regular hypnic jerks when I lay down a bit after supper, but these only started 2-3 years ago
- occasional stiff-like pain in my soles and in my thighs, right one is more prominent. it occurs after long walks or activity
- slight cramp-like pain in hands (palm and a few fingers, especially in right hand) that started a few weeks after leg onset
- hands are shaking when lifted up in front of me, right hand tremor sometimes becomes uncontrollable
- pain in my fingertips, for example when typing. loss of coordination in fingers (I used to do "finger drumming" with no problem but now I lost the rhythm, especially the middel finger of the right hand "misses the beat")
- slight fasciculations in muscles around elbows too, but they are hard to notice, nothing serious

Non motor-related symptoms that started somewhat later (a week maybe) then the leg weakness:

- acid reflux, "lump in throat", and a curious, choking pressure-like feeling in front of my neck, around the larynx, which was more prominent when I tilted my head forward. I couldn't stand to tie a scarf around my neck because I started choking
- morning nausea, slight need to vomit that goes away during the day
- loss of appetite, loss of thirst, except for late night, then I start eating alot
- loss of body mass, 3 kg in a week, I was 67 kg, now I'm 64, and I can't gain weight back even if I "force down" food
- frequent urination but it only lasted a week

Practisioners I visited, examinations I had:

GP, gastroenterologist, throat specialist, abdominal and neck ultrasound, gastroendoscopy, full blood count. So far nothing out of the ordinary

Now waiting for blood test results: antibody, rheumatoid factor, blood lipase, liver function


May be impotant: I have some "anxiety" problems. And maybe the two sets of symptoms are perfectly unrelated. Anyway, thank you for making it this far.

Sorry I forgot chest X-ray. Had that too.
 

lgelb

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Did you have a sleep study? Were you evaluated for RLS/PLMD? Everything you talk about could relate to lack of refreshing sleep.

I very much doubt you have ALS or anything like it.

Best,
Laurie
 

mansliplow

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Did you have a sleep study? Were you evaluated for RLS/PLMD? Everything you talk about could relate to lack of refreshing sleep.

I very much doubt you have ALS or anything like it.

Best,
Laurie

Since then I've had a full autoimmune blood panel and brain MRI (both clean), an EMG/ENG exam in three limbs and I also went to a neurologist. He says neither the EMG results nor the physical examination support the presence of MND.

What he didn't say is why I have muscle twitches and jerks every thirty second somewhere in my body and why the muscles in both my legs fasciculate 24 hours a day, especially my calves. Not to mention the soreness and DOMS pain even after a minimal physical activity, like tooth brushing, holding up my hand for a minute, typing or walking a few miles.

The strangest part is that during the neurological examination there were zero fasciculations or twitches.

I honestly don't know how to proceed from here.
 

affected

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The good news for you is that lots and lots of people twitch, and really it means nothing sinister. You may need to look at sleep, hydration, diet, posture, your bed and pillows, activity levels. All these things are much more likely to be associated than a rare terminal disease. Maybe talk to your doctor about these things. Often ruling out anything sinister is a great step towards addressing lifestyle issues that can be modified.
All the best as you figure this out with your doctor.
 
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