Nelbert
New member
- Joined
- Feb 15, 2020
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SE
- State
- ST
- City
- St
Hi all you incredible people!
I'm new here. Looked here a few times over the last three months (I have read the stickies several times). I'm - like everyone else - scared.
I'm a 33 year old male. Type 1 diabetic since long. Really scared. I hope I can get some advice from you, if you can offer it. I'm ashamed for posting here, I really am. You're all so incredible, and here I am panicking... But I don't know what else to do.
My symptoms in order:
- Early december 2019: Fasics start, all over. Aching in neck and right shoulder blade area.
- Late december 2019: Aching in neck and right shoulder blade worsens. Fascics continue all over.
- mid january 2020: Aching continues. Right foot starts to cramp lightly at random. Start slipping with right foot. Fascics continue but start to concentrate in right arm and right foot.
- Late january 2020: Right foot is now slipping constantly. Like when I push off, it slips back and the heel flies up towards the butt (not that far of course, but in that direction with a few cm). Fascics now only in arms and legs. Occasionally they are so strong that individual fingers move on their own, especially thumbs. Same with toes on right foot (although mor rarely) . Shoulder/arm feels like it's getting weaker.
- Early february 2020: Something in right arm is now (subjectively but certainly) weak. Shoulder aches a lot less though. Right is my dominant arm. Fascics much more frequent in right shoulder blade now. When I try to lift a pint of beer off the table, my right arm is waaay weaker. The pint feels like it weighs a ton and it takes a lot more strength to lift. Foot slipping continues. Random shooting pains here and there from all arms and legs. Right foot randomly hurts like a mf when I walk without shoes. Random fasics have almost disappeared except for in right foot, both calves, right arm and right shoulder/shoulder blade (I still do get random ones here and there on occasion but very rarely). I do have a lot of sensory symptoms in my right foot and very rarely in right hand and bicep. Vibration/buzzing mainly. Not sure if it's internal tremor or just sensory though. Occasional electric sensation too.
Fascis mostly subside during muscle use, but occasionally appear when moving as well. Right after i have used any muscle in my arms or legs, fasics start popping in the used muscle like crazy though, as well as the occasional cramp.
So. I know it's probably silly, but I'm effing scared. Not to die really, but for the fact that the child I'm expecting will grow up fatherless. I know it sounds dramatic, but dear me am I freaking out. Never been the anxious type before. I've had a clean brain MRI, and basic neuro by my GP in early jan. Bloodwork clean too. Only weird thing noted was definite HYPOreflexia in my patellar reflex, bilaterally.
I wasn't really worried until i started experiencing the weakness in my right arm (it's slight, but it's there). I'm not athletic and don't really work out but I've always been quite strong (really, I have, haha). Now, I feel like a beer weighs a ton.
MS has been ruled out via MRI (previously my GPs prime suspect due to diabetes). Diabetic neuropathy is also highly unlikely due to full sensation in all peripherals.
Gonna see a neuro soon I hope, but I'm so xxxxx scared. I've read quite a few "atypical" onsets in this forum, and they seem to often be in the younger range (I remember reading that atypical onset is more common in young people in a few papers as well) and that is what terrifies me. Sorry to take up your valuable time, but if you have any to spare, what do you think?
Tons of love and sorry for the long post,
N
I'm new here. Looked here a few times over the last three months (I have read the stickies several times). I'm - like everyone else - scared.
I'm a 33 year old male. Type 1 diabetic since long. Really scared. I hope I can get some advice from you, if you can offer it. I'm ashamed for posting here, I really am. You're all so incredible, and here I am panicking... But I don't know what else to do.
My symptoms in order:
- Early december 2019: Fasics start, all over. Aching in neck and right shoulder blade area.
- Late december 2019: Aching in neck and right shoulder blade worsens. Fascics continue all over.
- mid january 2020: Aching continues. Right foot starts to cramp lightly at random. Start slipping with right foot. Fascics continue but start to concentrate in right arm and right foot.
- Late january 2020: Right foot is now slipping constantly. Like when I push off, it slips back and the heel flies up towards the butt (not that far of course, but in that direction with a few cm). Fascics now only in arms and legs. Occasionally they are so strong that individual fingers move on their own, especially thumbs. Same with toes on right foot (although mor rarely) . Shoulder/arm feels like it's getting weaker.
- Early february 2020: Something in right arm is now (subjectively but certainly) weak. Shoulder aches a lot less though. Right is my dominant arm. Fascics much more frequent in right shoulder blade now. When I try to lift a pint of beer off the table, my right arm is waaay weaker. The pint feels like it weighs a ton and it takes a lot more strength to lift. Foot slipping continues. Random shooting pains here and there from all arms and legs. Right foot randomly hurts like a mf when I walk without shoes. Random fasics have almost disappeared except for in right foot, both calves, right arm and right shoulder/shoulder blade (I still do get random ones here and there on occasion but very rarely). I do have a lot of sensory symptoms in my right foot and very rarely in right hand and bicep. Vibration/buzzing mainly. Not sure if it's internal tremor or just sensory though. Occasional electric sensation too.
Fascis mostly subside during muscle use, but occasionally appear when moving as well. Right after i have used any muscle in my arms or legs, fasics start popping in the used muscle like crazy though, as well as the occasional cramp.
So. I know it's probably silly, but I'm effing scared. Not to die really, but for the fact that the child I'm expecting will grow up fatherless. I know it sounds dramatic, but dear me am I freaking out. Never been the anxious type before. I've had a clean brain MRI, and basic neuro by my GP in early jan. Bloodwork clean too. Only weird thing noted was definite HYPOreflexia in my patellar reflex, bilaterally.
I wasn't really worried until i started experiencing the weakness in my right arm (it's slight, but it's there). I'm not athletic and don't really work out but I've always been quite strong (really, I have, haha). Now, I feel like a beer weighs a ton.
MS has been ruled out via MRI (previously my GPs prime suspect due to diabetes). Diabetic neuropathy is also highly unlikely due to full sensation in all peripherals.
Gonna see a neuro soon I hope, but I'm so xxxxx scared. I've read quite a few "atypical" onsets in this forum, and they seem to often be in the younger range (I remember reading that atypical onset is more common in young people in a few papers as well) and that is what terrifies me. Sorry to take up your valuable time, but if you have any to spare, what do you think?
Tons of love and sorry for the long post,
N