weakness after EMG

[worried27]

I'm not trying to diagnose myself, it just seems logical to me that the rest of my story will be like this, because the EMG change precedes clinical weakness (as indicated in the pinned thread)
you all know the especially emotional difficulty in the diagnosis process
I got to the point that I was demotivated to look for specialist because the result is the same ...
anyway thanks for answering my questions and clarifying things

 

[Nikki J]

Active denervation comes first and continues happening in ALS. After few weeks you then start to see active and chronic denervation both if it is ALS

 

[worried27]

Ok thank's Nikki
what makes me certain of my diagnosis that there is not something else that can explain a generalized chronic denervation, especially at the bulbar level
I think they are waiting for proof of progression either clinically or on EMG,
what drives me crazy what the 1st neuro told me despite knowing my EMG results
but I was not 100% aware to discuss this with her I was in limbo because I did not expect to see contradictory results of what I said before, I was in shock
my only option today is to wait for what will change over time as i have lost confidence in all the doctors
I know you are not supposed to support a person with the formal diagnosis,
but I have no other place to express myself
I am in a deteriorated psychological state
anyway , thank you all for answering my questions

 

[Nikki J]

No you didn’t understand. As far as I can see from what you said you have only chronic denervation. In ALS acute comes first and STAYS while chronic denervation develops later and coexists because als is an ongoing process. There are many things that will give a picture of chronic denervation only

you need to work with your doctor

 

[worried27]

Thanks for the clarification Nikki

I have a lot of questionnaires to ask the doctor when I come back to the 1st who ordered me the EMG or another

 

[affected]

There are so many things that are far more likely to be the cause - you have chosen to fixate on the most rare one that isn't supported by your symptoms. That's the end of what we can say. People with no medical knowledge become so certain they fit what they perceive as the interpretation of things they read.

You truly must only work with your doctor now. Please don't post again now until you come back with a diagnosis, even if you don't quite believe it. All the very best, I know it is hard going through this.