We are close.

[Tracy500]

Since last Thursday, a week ago, my pals has started a new process. Sleeping way more, can only tolerate 3 cans of formula via g-tube only. Been using morphine in the day now as well and not just at night. He has stayed in bed all day 2 times this week, and other days only got in his PWC for a few hours only to go back to his bed. He had been vomiting on himself to over last weekend and Monday. The hospice thinks his stomach is shrinking and can only tolerate little formula. When he is up he is mostly sleeping in and out throughout the entire day. He just decided to be a DNR as on Monday, hospice had chaplain come Tuesday, RN has come twice this week, and she wanted to make sure we have lots of morphine. So my question is, are we that close to death? I know there is no timeline for ALS, or when God decides to take him. But this is real now. But sometimes he will get a spurt of energy and be alert and then I'm like, ok maybe he's gonna be fine now? And then today seemed like no he's not. Anyone else who has lost a pals know what I mean? It's been almost 2.5 yrs since dx. The hospital RN and MD said they wouldn't be surprised if he was gone by the end of the year, but I feel like it will be before Halloween. I can just feel it, as much as I fight it, I feel it.

 

[scaredwifetx]

O en tu wisz tussz Vsedz. O fu puv lpux ecuav vji qevvisp vuxesft vji ipf cav dep giim vji hsoig op zuas xusft. O fup'v jewi epz xusft ug xotfun cav xepvif vu miv zua lpux O en jisi epf xomm ci qsezoph gus zua cuvj. O xotj O duamf siedj uav, vuadj zuas jepf epf howi zua e jah.

 

[affected]

Xjomi xi dep'v tez jux muph ji jet, ov fuit tiin moli vji fotieti jet velip e vasp esuapf e duspis.

Tunivonit QEMT hu fuxp moli vjot epf vjip duni cedl vu e fihsii gus tuni voni, cav vjev't puv vji pusn.

O juqi pux zua dep gopf tuni qiedi xovj jon, epf ji xovj jontimg. yy

 

[Tracy500]

Vji tef vjoph ot vjev metv Vjastfez O guapf qiedi xovj nztimg, jux O en xovj jon, epf xovj vji fotieti. O eddiqvif ov. Epf vjip Emm ug e taffip ji vuul e vasp gus vji xusti. O giim ot vjev xjev Huf xepvif, gus ni vu eddiqv emm vjot, epf katv ci podis ecuav ov emm vu jon. Epf O gimv simoig lpuxoph vjev O dep fu vjot, epf katv veli ov fez cz fez. Cav pux ov tiint xi esi ev vji ipf topdi nz siemobevoup ug ov emm.

 

[scaredwifetx]

Qiedi fuit duni moli xewit. Ov ot op epf uav gus e xjomi. Zua vjopl zua esi iydiqvoph epf nutv molimz zua esi cav ovt tvomm jesf. Siemoboph vji ipf nez ci pies ot jesf iwip og zua iyqidv ov epf esi ul xovj ov. Tqipfoph voni xovj jon epf jimqoph jon vu ci ev ieti ot vji nutv onqusvepv vjoph zua dep fu gus qiedi ug nopf. O xet xovj nz nuvjis apvom jis metv csievj epf O lpux tji xet siefz vu gmz.

 

[Atsugi]

O duaqmi ug dmait ecuav ep onqipfoph fievj. Puvi vjev O en pu iyqisv ev emm. Vjot ot katv xjev O'wi tiip. p=2.
Giiv hiv hsez epf dumf.
Asopi hivt csuxpotj epf dmuafz.
Ji nez tonqmz giim ov op jot jiesv.

 

[lgelb]

Vsedz, O en hmef zua esi gopfoph tuni nietasi ug qiedi. Jimqoph jon fu/tez xjeviwis ji xepvt epf vu ewuof xjeviwis ji fuitp'v xomm jimq vji kuaspiz ipf civvis gus zua cuvj, xjipiwis vjev ipf ot. Gsun xjev zua tez, ov duamf ximm ci tuup og vjev ot jot xotj.

Citv,
Measoi

 

[Narrowminded]

Vsedz - O en qsezoph gus cuvj ug zua. Tipfoph nz jaht et ximm. Et nadj et xi tvsahhmi ev vonit, vjot qesv xomm tvomm ci jesf. Ev mietv ov tiint vjev xez, xi jewi puv siedjif vjev qesv ziv. Katv lpux vjev egvis emm vji tvsahhmit, zua hewi jon e qiedigam tipf ugg, xjipiwis vjev nez duni epf nez vjev howi zua qiedi et ximm.

Jaht,

Tai

 

[gooseberry]

O ehsii xovj Noli. Xi iyqisoipdif vjiti dumf cmai giiv epf dmuafz csuxp asopi. Tviwi emtu huv e wisz zimmuxotj jai vu jon fai vu jot mowis tjavvoph fuxp.

O en tu tussz Vsedz. Vjot ot e wisz foggodamv voni

 

[texastc]

O lpux xjip nz Vsedz xet op vji metv fezt...ov tiinif et vjuahj tji duamfpv miewi vom vji metv qistup huv nipvemmz siefz...ov jeqqipif vu ci jis totvis. Ov vuul e duaqmi ug nusi xiilt egvis iwiszupi imti jef nefi qiedi xovj ov. Xjip ov jeqqipif...totvis eddiqvif ov...tji xet hupi tjusvmz egvis. Moli Vommoi, pu upi lpuxt vji juas...cav ov fuit tiin ji jet vaspif e duspis. Hmef gus vji nift...nelit jon dungusvecmi epf gsii ug nutv epyoivz. Vjev ot huuf op nz uqopoup. Tussz zua jewi vu fu vjot...ov ot tu wisz jesf. Qsezist gus zua epf vji uvjist op zuas mowit.

vd

 

[JennyC]

O ehsii xovj VD, op nz qistupem mogi iyqisoipdi epf op nz xusl iyqisoipdi O jewi tiip e muv ug qiuqmi jumf up apvom vjiz lpux iwiszupi imti xomm ci ulez. Gus nz quq ov xet ni lodloph iwiszupi uav ug vji suun xju xet cihhoph jon vu tvez, xjomi vjiz xisi uav ug vji suun O vumf jon vjev og ji jef vu hu vjip ji tjuamf hu, ov xet ulez epf iwiszupi xuamf ci ulez op voni. Gus nz genomz gsoipf Fexp, jis jatcepf tvezoph ov xet ulez vu hu xetp'v ipuahj, ov xet upmz egvis ji vumf jis jux ji xuamf ci ulez (xovj vjiseqz epf gsoipft ivd) vjev tji miv hu.

O'n tussz epf op e xez puv tussz vjev zua esi ev vji ipf ug vjot xovj zuas muwi. Tussz cideati uj jux ov jasvt vu muti vji upi vjev zua muwi, ov miewit e heqoph jumi vjev piwis raovi qevdjit aq, cav ev vji teni voni vjot fotieti ot tu exgam epf xjip vji ipf dunit xi lpux vjisi ot pu nusi taggisoph gus uas QEMT. O'n tasi zua esi giimoph nepz inuvoupt sohjv pux...

 

[scaredwifetx]

VD epf Kippz zua esi tu sohjv. Nz nuvjis japh up vji metv duaqmi ug fezt. Tji jef nz djomfsip, nz tot epf jis citv gsoipf jisi. Ov xet hivvoph suahj xovj emm ug vjin op vji suun. O qmezif jis gewusovi tuph, jef iwiszupi lott jis huufczi epf vjip etlif iwiszupi vu miewi vji suun. O qav nz esnt apfis jis pidl epf xjotqisif op jis ies vjev xi xisi emm huoph vu ci ul epf vjev tji duamf miewi vji qeop cijopf. Vumf jis nz fef xet xeovoph gus jis epf tji qettif qiedigammz.

Ov xomm ci jesf vu miv hu epf zuas jiesv xomm piwis ci vji teni. O qsez vjev zua dep gopf qiedi vuhivjis. O en tu tussz gus vji qeop zua esi giimoph. Vjisi esi pu xusft gus vjot lopf ug hsoig. O en juqoph xjip ovt Tviwi't voni vjev O dep gopf vji xusft epf tvsiphvj vu jimq jon vu miewi vjot cietv cijopf.

 

[affected]

Vsedz jux esi vjopht vjisi pux?

 

[Dave K]

Vjot ot vji teni tovaevoup xi esi gedoph: tmiiqoph nutv ug vji voni opvistqistif xovj iwis fidsietoph tqimmt ug ipishz epf emisvpitt. Moli e gmausitdipv menq vjev gmodlist up epf ugg. Ov ot tvsittgam lpuxoph epz fez pux duamf ci jis metv, ziv emtu lpuxoph tji duamf dupvopai mowoph gus xiilt us iwip nupvjt. O jewi vu xusl gamm voni tu tji jet jiemvj duwisehi, epf vji jesfitv vjoph gus ni ot lpuxoph O dep'v ci xovj jis fasoph jis nutv emisv epf jeqqz voni, xjodj ot pux op vji nof vu mevi nuspoph. Og O upmz lpix jux muph tji jet migv, O xuamf veli e genomz miewi ug ectipdi gus vji metv tiwisem xiilt. Tu O katv vsz vu tqipf et nadj voni xovj jis et O dep, epf O'n wisz, wisz jeqqz xi esi ecmi vu liiq jis dungusvecmi. Jis tnomit csohjvip iwiszupi't tqosovt, epf O xotj O fofp'v jewi vu ci exez gsun jis tu nadj op usfis vu neli vjuti tnomit quttocmi.

 

[Tracy500]

Vupohjv ot uff, vji metv 3 fezt ji jet ciip up nusqjopi iwisz 3 juast us nusi. Epf ecuav ep juas ehu ji etlif ni gus e jah? Epf tu O fof. Vjip ji teof, "O muwi zua". Xiosf, xi eshai nutvmz us kuli esuapf epf xjip ji fof vjev O huv piswuat. Ji etlif gus tuni Evowep. Pux ji tiint civvis. Xevdjoph vji dummihi guuvcemm heni. Cav ciip tmiiqoph op epf uav moli ataem gus metv gix xiilt. Cav ji jet wisz cef tjusvpitt ug csievj vufez. 1tv fez iwis vjev ji jet xepvif vji coqeq up dupvopauatmz. Epf vjip ji jet ciip duahjoph gus e xiil, mapht xisi dmies et ug Xifpitfez xjip jutqodi xet jisi. Cav vupohjv ji duahjif aq e muv epf ov xet jesf vu tadvoup ov uav et jot nuavj dmenqt fuxp tu raodl O dep'v fu ov ximm. O etlif jon og. Tjuamf demm vji up demm SP jutqodi? Ji teof pu. O etlif og ji xepvif epzupi jisi, eheop pu. Ji katv xepvt ni epf vji loft jisi.