- Jan 28, 2015
Since last Thursday, a week ago, my pals has started a new process. Sleeping way more, can only tolerate 3 cans of formula via g-tube only. Been using morphine in the day now as well and not just at night. He has stayed in bed all day 2 times this week, and other days only got in his PWC for a few hours only to go back to his bed. He had been vomiting on himself to over last weekend and Monday. The hospice thinks his stomach is shrinking and can only tolerate little formula. When he is up he is mostly sleeping in and out throughout the entire day. He just decided to be a DNR as on Monday, hospice had chaplain come Tuesday, RN has come twice this week, and she wanted to make sure we have lots of morphine. So my question is, are we that close to death? I know there is no timeline for ALS, or when God decides to take him. But this is real now. But sometimes he will get a spurt of energy and be alert and then I'm like, ok maybe he's gonna be fine now? And then today seemed like no he's not. Anyone else who has lost a pals know what I mean? It's been almost 2.5 yrs since dx. The hospital RN and MD said they wouldn't be surprised if he was gone by the end of the year, but I feel like it will be before Halloween. I can just feel it, as much as I fight it, I feel it.