jlcarnahan
New member
- Joined
- Nov 20, 2013
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 11/2013
- Country
- US
- State
- Fl
- City
- Avon Park
My husbands side of the family seems to have a very strong persistent gene. My husband is now the 8th person in his family to be diagnosed. I would love to connect with others who are familiar with SOD1 and/or FALS. My experience was with his father who passed 8 months after diagnosis at 53 (we believe he knew several months before going in), and my BIL who passed at 33 about 10 months after diagnosis. My husband is 41.