Kenny H
Member
- Joined
- May 22, 2008
- Messages
- 22
- Reason
- DX UMND/PLS
- Diagnosis
- 02/2005
- Country
- US
- State
- RI
- City
- Providence
Hi, Everyone,
Couple of things: My speech began to get a bit funky a few months ago. The mobility issue is annoying, but the speech thing is alot tougher for me to handle. I asked a speech pathologist who deals with neuro stuff about trying Baclofen. She said she has heard mixed results, but give it a shot. I am up to 30mg now and it is helping!
I have mobility issues, especially going down stairs and walking on uneven or slippery surfaces. The other night, I was going up stairs in my house, sort of pulling myself up by the rail. This is totally unnecessary, but I was being lazy. On stair 6, my hand slipped and down I went, backwards, to the first floor. I was lucky: cracked 3 ribs, bruised the left rear of my pelvis bone....it could have been worse. This in combo with the PLS is pretty miserable. For those of you who get muscles spasms picture this: a full body spasm that lasted about 45 minutes which made me scream from pain with the injuries. Much better now though.
Morale of the story: even though we want to plow ahead and be tough [or cool as I say], be careful on hazards like stairs and other "red alert" areas.
Kenny
Couple of things: My speech began to get a bit funky a few months ago. The mobility issue is annoying, but the speech thing is alot tougher for me to handle. I asked a speech pathologist who deals with neuro stuff about trying Baclofen. She said she has heard mixed results, but give it a shot. I am up to 30mg now and it is helping!
I have mobility issues, especially going down stairs and walking on uneven or slippery surfaces. The other night, I was going up stairs in my house, sort of pulling myself up by the rail. This is totally unnecessary, but I was being lazy. On stair 6, my hand slipped and down I went, backwards, to the first floor. I was lucky: cracked 3 ribs, bruised the left rear of my pelvis bone....it could have been worse. This in combo with the PLS is pretty miserable. For those of you who get muscles spasms picture this: a full body spasm that lasted about 45 minutes which made me scream from pain with the injuries. Much better now though.
Morale of the story: even though we want to plow ahead and be tough [or cool as I say], be careful on hazards like stairs and other "red alert" areas.
Kenny