Moonwolfy
Member
- Joined
- Sep 26, 2012
- Messages
- 20
- Reason
- DX UMND/PLS
- Diagnosis
- 09/2012
- Country
- US
- State
- Ca
- City
- Eastvale
I am newly diagnosed with PLS..symptom onset was 2 yrs ago. My neuro referred me to be evaluated for a Peg feeding tube. I do sometimes have issues swallowing but not all the time. I can't speak at all and use a iPad with a speech app. I initially lost a ton of weight at onset of symptoms but have gained it all back in past year..probably due to not being as active and mobile as before and too much fast food. Was wondering if it's common for those diagnosed with PLS to be evaluated for a Peg? I've been researching everything I can about PLS, ALS, MND, etc. I know PLS is rare so not as much info out there. My neuro seems really great but he kinda just threw out referral and term Peg like I'd know what was and when I asked quickly said feeding tube. I was kinda in shock and freaked a bit. I don't think I need at this time but was wondering if anyone with PLS has a Peg and if it's common as I thought this was more for those diagnosed with ALS? My evaluation is Tuesday and I'm kinda nervous. Thanks