Was just told I have PLS by Dr Trigg

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KevinR

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Joined
Mar 9, 2020
Messages
29
Reason
DX MND
Diagnosis
00/0000
Country
US
State
FL
City
Melrose
Who do I need to see or what do I need to do in order to get it changed to a presumptive ALS? He said I def have upper motor neuron disease but would not go as far as saying ALS. He ordered another swallow eval ( frequent aspiration) and PFT's. It feels like they're just doing a slow roll In order not to pay or treat. I was in desert storm, exposed to sarin at the K pit demolitions, oil well fires and took PB. Any help would be nice.
 
The neurologists at OHSU classify me as having ALS, with a "working diagnosis" of PLS.
 
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