KevinM
Senior member
- Joined
- Mar 30, 2019
- Messages
- 559
- Reason
- PALS
- Diagnosis
- 06/2019
- Country
- US
- State
- FL
- City
- Tallahassee
Though I don’t believe he was a forum member, I had followed the story of Warren Osborn because he had used his substantial wealth to undergo more stem cell transplants and other experimental treatments from around the world than anyone I—and Dr. Bedlack for that matter—had ever heard about.
Unfortunately, they were not successful and he passed the other day, about four years from diagnosis. I suppose it is possible that he slowed his progression to a modest degree, but my gut tells me he would have progressed as he did with or without his efforts. I sure don’t blame him for using his wealth to try to find something that worked.
For me, the message that Laurie and others here espouse—to live your life until you can’t—resonates more strongly with Warren‘s passing, because all the resources in the world and the willingness to try anything and everything to dramatically slow or halt progression can’t change the hand we are dealt. We either progress quickly, moderately, or slowly, and there is presently nothing available to alter that course. Maybe some day, but not for our generation of pALS.
RIP.
Unfortunately, they were not successful and he passed the other day, about four years from diagnosis. I suppose it is possible that he slowed his progression to a modest degree, but my gut tells me he would have progressed as he did with or without his efforts. I sure don’t blame him for using his wealth to try to find something that worked.
For me, the message that Laurie and others here espouse—to live your life until you can’t—resonates more strongly with Warren‘s passing, because all the resources in the world and the willingness to try anything and everything to dramatically slow or halt progression can’t change the hand we are dealt. We either progress quickly, moderately, or slowly, and there is presently nothing available to alter that course. Maybe some day, but not for our generation of pALS.
RIP.