isabel
New member
- Joined
- Oct 19, 2012
- Messages
- 6
- Reason
- Loved one DX
- Country
- SP
- State
- caceres
- City
- caceres
my mum has als, she cant mover her body at all and she has started to lose the ability to talk. the prospect of losing her speech is triggering puzzling behaviour in her that are completly out of character . Fear,anxiety, horror show on her face, sheś become incredibly suspicious of everyone around her , including her own children, she lashes out and screams at people when we cant understand her wishes.
She is 72 now and i think she is rapidly slipping into dementia. Last night, she called me every five minutes to adjust her pillow, to give her a drink of water, to adjust the position of her feet , hands , head etc. Being exhausted i decided to take a nap and she didnt stop calling for me for a full hour, saying that i was a bad bad daughter. I tried over and over to reason with her that all her needs have been adressed and she could peacefully go to sleep now, but she wouldnt believe
me. On top of that , and out of sheer desperation and helplesness she screams and shrieks and that is really revealing of the amount of suffering she is going throung.
I am a at loss about how to help her at this stage. Could anybody give some advice? it is horrendous seeing her like that, only two years ago she was still in the kitchen cooking to have her kids and grandchildren over for lunch. please, dont offer me prayers, i am european and i think only good, positive behaviour advice would be of some use.
thank u.
She is 72 now and i think she is rapidly slipping into dementia. Last night, she called me every five minutes to adjust her pillow, to give her a drink of water, to adjust the position of her feet , hands , head etc. Being exhausted i decided to take a nap and she didnt stop calling for me for a full hour, saying that i was a bad bad daughter. I tried over and over to reason with her that all her needs have been adressed and she could peacefully go to sleep now, but she wouldnt believe
me. On top of that , and out of sheer desperation and helplesness she screams and shrieks and that is really revealing of the amount of suffering she is going throung.
I am a at loss about how to help her at this stage. Could anybody give some advice? it is horrendous seeing her like that, only two years ago she was still in the kitchen cooking to have her kids and grandchildren over for lunch. please, dont offer me prayers, i am european and i think only good, positive behaviour advice would be of some use.
thank u.