Tim-CNY
New member
- Joined
- Dec 3, 2012
- Messages
- 4
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- Syracuse
Hi everyone, I'm another undiagnosed and I'm really just looking to vent a bit. It almost seems the waiting is worse than knowing for sure what's wrong.
I'm a 32 yo male, and my issues started nearly 2 years ago with a sort of tingling sensation deep in my left calf. No visible twitches. I brought it up with my GP but it was more of an oddity than something that was really troubling to me.
The sensation was always there, and has never gone away since that time. Further things started to crop up though, and my GP referred me to a neurologist (~1 year ago)
My full list of symptoms, some may be unrelated:
I've run the gamut of tests:
He's said he can't explain the EMG (?), and has referred me to a neuromuscular specialist an hour away. My next EMG is scheduled for January, so I hope I'll have further answers at that time.
The internet certainly doesn't help for anxiety levels, but this forum really seems to have some good people on it. I appreciate anyone taking the time to read this.
-Tim
I'm a 32 yo male, and my issues started nearly 2 years ago with a sort of tingling sensation deep in my left calf. No visible twitches. I brought it up with my GP but it was more of an oddity than something that was really troubling to me.
The sensation was always there, and has never gone away since that time. Further things started to crop up though, and my GP referred me to a neurologist (~1 year ago)
My full list of symptoms, some may be unrelated:
- Tingling in calf. This is constant, but has periods where it gets stronger for a few weeks. Occasionally I do see twitches.
- Left arm also tingles at times.
- Muscle cramps
- Easily fatigued left arm and left leg.
- Perceived weakness
- Eyelid twitches visible
- My cheek felt numb and had visible twitching for a few days
- Left eye started to hurt, went from 20/20 vision to 25/20 and needing glasses this year
- I get itchy all over, with no visible rashes
- Trouble swallowing for a few weeks. This may have been reflux.
I've run the gamut of tests:
- CBC: Vitaman D was low. I've been taking supplements since the test with no improvements.
- Myotonic Dystrophy negative
- Diabetes negative
- No atherosclerosis
- No clinical weakness noted
- Rheumatoid factor is high, I have an appointment in a few weeks with a specialist.
- MRI: He said there was a small lesion on brain, but he seemed unworried about that.
- EMG: Abnormal. He stated it looked worse in my left arm than my leg
- NCV normal
He's said he can't explain the EMG (?), and has referred me to a neuromuscular specialist an hour away. My next EMG is scheduled for January, so I hope I'll have further answers at that time.
The internet certainly doesn't help for anxiety levels, but this forum really seems to have some good people on it. I appreciate anyone taking the time to read this.
-Tim