AvaA
New member
- Joined
- Mar 11, 2020
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- BC
- City
- Glasgow
Hi all, firstly a big thank you in advance for any responses to the below.
I'm currently struggling with the wait for an EMG and would like some advice. 36 year old female, my symptoms are as follows:
Body wide twitching for 1 year
Constant / persistent tongue fasiculations, at rest, for at least 1 month (I cannot feel these, and so can't say for sure if they've been happening longer)
Post nasal drip, excess mucus and blocked nose for 2 months (antibiotics and nasal sprays have been prescribed with no effect)
Swallowing issues (slight regurgitation and Globus sensation)
Shortness of breath
Low back pain and neck/ shoulder pain
Slight loss of mobility range in my right hand (last 2 fingers now have limited range of motion/reduced strength)
Severe, painful myclonic jerks
Tremors in my hands and arms (eg severe shaking just holding my phone, or holding my thumb up to type) after even slight exertion. I have had persistent fasics in my right thenar muscle which now has a dent where the twitches are, although this is simply my own observation at this stage.
On clinical exam in November the neuro observed fasiculations only, no weakness (right hand reduced motion symptoms and tremors have developed since then).
My EMG is scheduled for the end of the month and I confess I am very much struggling with the wait and uncertainty (unfortunately our healthcare system is overloaded and I can't be seen any earlier). I'd like to know if a) you have any advice for this appointment (questions I should ask etc) and b) if this sounds like the onset of ALS in your experiences.
Thank you in advance.
I'm currently struggling with the wait for an EMG and would like some advice. 36 year old female, my symptoms are as follows:
Body wide twitching for 1 year
Constant / persistent tongue fasiculations, at rest, for at least 1 month (I cannot feel these, and so can't say for sure if they've been happening longer)
Post nasal drip, excess mucus and blocked nose for 2 months (antibiotics and nasal sprays have been prescribed with no effect)
Swallowing issues (slight regurgitation and Globus sensation)
Shortness of breath
Low back pain and neck/ shoulder pain
Slight loss of mobility range in my right hand (last 2 fingers now have limited range of motion/reduced strength)
Severe, painful myclonic jerks
Tremors in my hands and arms (eg severe shaking just holding my phone, or holding my thumb up to type) after even slight exertion. I have had persistent fasics in my right thenar muscle which now has a dent where the twitches are, although this is simply my own observation at this stage.
On clinical exam in November the neuro observed fasiculations only, no weakness (right hand reduced motion symptoms and tremors have developed since then).
My EMG is scheduled for the end of the month and I confess I am very much struggling with the wait and uncertainty (unfortunately our healthcare system is overloaded and I can't be seen any earlier). I'd like to know if a) you have any advice for this appointment (questions I should ask etc) and b) if this sounds like the onset of ALS in your experiences.
Thank you in advance.