WhatNow
New member
- Joined
- Nov 3, 2020
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 12/2020
- Country
- CA
- State
- ON
- City
- Norfolk
Back in January I was out walking with my husband. My left foot dropped, and I tripped and fell on my face. By April, people were asking me why I was limping. In May, I tripped over my own foot again. In June a friend asked me if I could walk on my heels (no) and suggested that I see my GP asap.
Since then I have seen a neurologist for an EMG, have been referred to a neuromuscular clinic in a nearby city, and I’m waiting on MRI scans on neck and spine. The last specialist I saw was talking about ALS but I do not have an official diagnosis. My next appointment is not for another six weeks. I am stumbling over my feet (usually right foot) regularly and am getting a brace to help with the drop foot.
Since I was not really expecting such a serious condition, I was pretty free with information to friends and family about upcoming appointments. I do not want to talk about any of this with them right now.
I believe it will be an ALS Dx. How do I not go completely crazy until I finally get some answers?
Since then I have seen a neurologist for an EMG, have been referred to a neuromuscular clinic in a nearby city, and I’m waiting on MRI scans on neck and spine. The last specialist I saw was talking about ALS but I do not have an official diagnosis. My next appointment is not for another six weeks. I am stumbling over my feet (usually right foot) regularly and am getting a brace to help with the drop foot.
Since I was not really expecting such a serious condition, I was pretty free with information to friends and family about upcoming appointments. I do not want to talk about any of this with them right now.
I believe it will be an ALS Dx. How do I not go completely crazy until I finally get some answers?