Kittycat
New member
- Joined
- Apr 12, 2015
- Messages
- 6
- Reason
- Loved one DX
- Diagnosis
- 04/2015
- Country
- UK
- State
- Antrim
- City
- Belfast
Hello, I'm new here. My dad has just been diagnosed with MND. He's 68. The doctor told us last week that she is about 50% sure that it's familial MND. We have no history of it that we are aware of but my fathers mother died in her late 50's from an unknown illness. She was very frail and bedridden with curled up hands and legs. She actually died of pneumonia in the end, which I know fits with MND, but my dad had always been told she had arthritis. Of course arthritis doesn't kill you or waste you away in your 50's. The doctor feels that this could have been undiagnosed MND. We don't know anything about the rest of her family as we've never had contact with them. I'm told she had a normal voice at all times. Is it ever possible to have MND to the extent of being bedridden etc but to still have a normal voice? My dads voice is very weak.
I'm very worried because I have had symptoms that fit since before Christmas at which point I'd never even heard of MND. I'm 35. I'd been to the doctor with some breathing issues, especially at night, and I've been tripping over things with one foot or stubbing my toe very regularly, sometimes two and three times a day. It's always the same foot. I now feel that my right arm is weaker than the left and that my legs are heavy. Of course this could be psychosomatic because I'm so worried I'm looking for problems and seeing issues where there are none. I also feel that I'm frequently stumbling over words. I have no obvious muscle wastage or fasciculations or anything like that. I think if I do have it its very early stages and I'd never have thought of it if the doctor hadn't brought up familial MND. She also mentioned kennedys disease but seemed to feel that that is unlikely. This wouldn't affect me of course as I am female. She focused a lot on our family history of depression and a suicide. I've never heard mention of depression or suicide having a link to familial MND. Is that an established link?
I'm basically worried sick. I know no one has the answer or can diagnose me, but I could do with some support or reassurance until we get the results back. Thank you in advance and sorry for the panicked rambling!
I'm very worried because I have had symptoms that fit since before Christmas at which point I'd never even heard of MND. I'm 35. I'd been to the doctor with some breathing issues, especially at night, and I've been tripping over things with one foot or stubbing my toe very regularly, sometimes two and three times a day. It's always the same foot. I now feel that my right arm is weaker than the left and that my legs are heavy. Of course this could be psychosomatic because I'm so worried I'm looking for problems and seeing issues where there are none. I also feel that I'm frequently stumbling over words. I have no obvious muscle wastage or fasciculations or anything like that. I think if I do have it its very early stages and I'd never have thought of it if the doctor hadn't brought up familial MND. She also mentioned kennedys disease but seemed to feel that that is unlikely. This wouldn't affect me of course as I am female. She focused a lot on our family history of depression and a suicide. I've never heard mention of depression or suicide having a link to familial MND. Is that an established link?
I'm basically worried sick. I know no one has the answer or can diagnose me, but I could do with some support or reassurance until we get the results back. Thank you in advance and sorry for the panicked rambling!