Hello everyone.
I am very frightened at the possibility of an ALS dianosis.
It started with facial muscle weakness that at first I thought was TMJ. Then it was in my legs. I have trouble walking, and muscle atrophy in my left calf. The muscle is all but gone and I lost 10 pounds in one week.
I have major fasiculations in all weak areas and now they are moving up into my abdomen. My tounge feels thinck, and I have trouble getting words out. Trouble breathing lying down. Weak jaw and throat muscles make sleeping hard. First nero I saw was horrible. He noted brisk knee reflexes then He told me I probably had a virus and go see my regular doctor. Never checked out my limbs or anything. I made an appointment with the mda clinic and they cant see me until october. I get a little worse each day.
So far I have had a normal MRI except for cervical stenosis, but am told that would not cause all these symptoms.
Normal CPK, and no Lyme. Haven't got the west nile test back yet. Boy I sure wish I had west nile, how bad is that. Anything wouldbe better than this. I hate having to wait this long just tp go in ang get the EMG I so need. Its horrible to get doctor appointments out here. I have to wait a month just to see me regualr doctor. So I feel im going this alone.
I cant even handle each day Im so locked in depression and fear. Every day I wake up, I seem to be worse somewhat. I originaly though this was a setback from the gullian barre I had in 2003, but was told no as I have brisk reflexes. Also no sensory at all.
I have searched for any mimicks this could be but none fit: (I thinks its horrible that in my condition I have to wait so long, and that the first neurologist blew me off like that. I know the MDA clinic is good, but 4 month wait? When I'm having breathing problems now? This is insane.
The neuros comment that I saw was, well if your breathing gets bad go back
to the ER. I awas so deperate for a good neuro to see me now, I posted an ad on craigs list....... with no response. I'm not dealing very well. I'm only 33 and the mother of a 4 year old .
Wendy
I am very frightened at the possibility of an ALS dianosis.
It started with facial muscle weakness that at first I thought was TMJ. Then it was in my legs. I have trouble walking, and muscle atrophy in my left calf. The muscle is all but gone and I lost 10 pounds in one week.
I have major fasiculations in all weak areas and now they are moving up into my abdomen. My tounge feels thinck, and I have trouble getting words out. Trouble breathing lying down. Weak jaw and throat muscles make sleeping hard. First nero I saw was horrible. He noted brisk knee reflexes then He told me I probably had a virus and go see my regular doctor. Never checked out my limbs or anything. I made an appointment with the mda clinic and they cant see me until october. I get a little worse each day.
So far I have had a normal MRI except for cervical stenosis, but am told that would not cause all these symptoms.
Normal CPK, and no Lyme. Haven't got the west nile test back yet. Boy I sure wish I had west nile, how bad is that. Anything wouldbe better than this. I hate having to wait this long just tp go in ang get the EMG I so need. Its horrible to get doctor appointments out here. I have to wait a month just to see me regualr doctor. So I feel im going this alone.
I cant even handle each day Im so locked in depression and fear. Every day I wake up, I seem to be worse somewhat. I originaly though this was a setback from the gullian barre I had in 2003, but was told no as I have brisk reflexes. Also no sensory at all.
I have searched for any mimicks this could be but none fit: (I thinks its horrible that in my condition I have to wait so long, and that the first neurologist blew me off like that. I know the MDA clinic is good, but 4 month wait? When I'm having breathing problems now? This is insane.
The neuros comment that I saw was, well if your breathing gets bad go back
to the ER. I awas so deperate for a good neuro to see me now, I posted an ad on craigs list....... with no response. I'm not dealing very well. I'm only 33 and the mother of a 4 year old .
Wendy
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