rcharlton
Moderator emeritus
- Joined
- Jun 20, 2005
- Messages
- 641
- Reason
- PALS
- Diagnosis
- 11/2005
- Country
- CA
- State
- Ontario
- City
- Toronto
I'm not sure if I have limb onset or bulbar ALS - I had symptoms of both early on.
Complicating matters is the fact that I was born tongue tied - ie. my lingual frenulum is abnormally short and restricts mobility of the tongue tip - and had a speech impediment until I was 16 - I made the same sound for "th" and "s".
Anyway - I've always had a somewhat slurred speech - and it's been an effort to talk for some time - especially above noise or to the hearing impaired; however, I could always get the words out - until last Sunday. I was on the phone with a friend - and there were a couple of words that I could not enunciate or get out - my friend was subject to long silences on the phone while I worked on getting the words out. A pretty scary moment.
Coincident with this - two days earlier my fiance received an e-mail from a colleague suffering from ALS for over three years who now uses a voice box. One of her big regrets is that she did not record her own voice for use with the voice box before she lost the use of her speech.
I'm going to follow up on Al's referral to the Toront Rehabilition Clinic to see if they can give me some advice on voice banking.
Has anyone out there done any voice banking? What is the process like?
Thanks.
Richard
Complicating matters is the fact that I was born tongue tied - ie. my lingual frenulum is abnormally short and restricts mobility of the tongue tip - and had a speech impediment until I was 16 - I made the same sound for "th" and "s".
Anyway - I've always had a somewhat slurred speech - and it's been an effort to talk for some time - especially above noise or to the hearing impaired; however, I could always get the words out - until last Sunday. I was on the phone with a friend - and there were a couple of words that I could not enunciate or get out - my friend was subject to long silences on the phone while I worked on getting the words out. A pretty scary moment.
Coincident with this - two days earlier my fiance received an e-mail from a colleague suffering from ALS for over three years who now uses a voice box. One of her big regrets is that she did not record her own voice for use with the voice box before she lost the use of her speech.
I'm going to follow up on Al's referral to the Toront Rehabilition Clinic to see if they can give me some advice on voice banking.
Has anyone out there done any voice banking? What is the process like?
Thanks.
Richard