Nick11
New member
- Joined
- Jan 27, 2020
- Messages
- 5
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Pittsburgh
Hi Everyone, my name is Nick and I’m 35 years old. First, my deepest condolences and respect to all who have and are struggling with this terrible disease. I’ll try to keep this short. Starting in 2017 I noticed a slight difficulty with swallowing with solids; it progressed to now I have to drink something with anything solid (Literally every meal. Especially breads and meats) for the exception of say an apple or certain salads. In January 2019, I finally went to a GI doctor who performed an upper endoscopy and found no issues. In November 2019, my left bicep and right thigh started twitching, now the twitching has spread everywhere (tongue, eyes, lips, neck, back, chest, stomach, butt, both arms, shoulders, legs (especially right calf and front of lower right leg, cramps too), still significant in the starting locations). Also, the backside of my right hand between middle finger and pinky is showing muscle wasting. I do have some weakness there when I'm typing or using my right hand. I went to a neurologist last month, she said my reflexes are brisk but she said my strength is good; she doesn't seem overly concerned. However, she ordered an MRI, blood work, and video swallow test; They all came back normal. I asked to have an EMG which is scheduled for next month. I’ve always been athletic and I just feel like something is not right. I’ve been trying to fight fear and anxiety. Any thoughts would be greatly appreciated.