Hello All. First I want to say thank you so much for taking time to read this post.
31 year old male. Software Developer.
It all started with muscle twitches all over my body in early December 2021. I went down the google rabbit hole and became insanely scared. I suffer from diagnosed OCD and Health Anxiety Disorder. I sought out a neurologist to explain my concerns about the muscle twitching and she gave me a clinical exam and said "Well, you don't show any sings of weakness but we will go ahead with an EMG so we can rule your worries out for you." Fast forward to my EMG (which was done by a "Physical Medicine & Rehabilitation Specialist" and not a Neurologist). I was hoping that i would get the all clear after getting the results. Unfortunately that did not happen. It came back very dirty with some very concerning findings on both the EMG and the NCS. When I followed up with my Neurologist about the results and she said "well there is definitely something going on but it could be 100 different things, don't just jump to ALS." They want to do a muscle biopsy and a genetics test on me BUT they said "these tests aren't an emergency" and they have yet (after 2 weeks) to find any doctors who will perform these for me. I have called the multiple times and asked them if they have found anyone to do this and they are still being dismissive about it. They pretty much said I should try and look myself for doctors who will do them for me. My life have been put completely on hold. I cant stop crying, can't get any work done, can barely get out of bed, have been recording videos for my son to remember me by. It's been an absolute nightmare.
What are the odds that a dirty emg this bad with these findings are going to end up being ALS? From all the case studies I have been reading and from all the research I have done, it is looking a lot like that what the final diagnosis will be. I am having such a hard time accepting that ALS is the most likely outcome.
Thanks again everyone for reading this.
31 year old male. Software Developer.
It all started with muscle twitches all over my body in early December 2021. I went down the google rabbit hole and became insanely scared. I suffer from diagnosed OCD and Health Anxiety Disorder. I sought out a neurologist to explain my concerns about the muscle twitching and she gave me a clinical exam and said "Well, you don't show any sings of weakness but we will go ahead with an EMG so we can rule your worries out for you." Fast forward to my EMG (which was done by a "Physical Medicine & Rehabilitation Specialist" and not a Neurologist). I was hoping that i would get the all clear after getting the results. Unfortunately that did not happen. It came back very dirty with some very concerning findings on both the EMG and the NCS. When I followed up with my Neurologist about the results and she said "well there is definitely something going on but it could be 100 different things, don't just jump to ALS." They want to do a muscle biopsy and a genetics test on me BUT they said "these tests aren't an emergency" and they have yet (after 2 weeks) to find any doctors who will perform these for me. I have called the multiple times and asked them if they have found anyone to do this and they are still being dismissive about it. They pretty much said I should try and look myself for doctors who will do them for me. My life have been put completely on hold. I cant stop crying, can't get any work done, can barely get out of bed, have been recording videos for my son to remember me by. It's been an absolute nightmare.
What are the odds that a dirty emg this bad with these findings are going to end up being ALS? From all the case studies I have been reading and from all the research I have done, it is looking a lot like that what the final diagnosis will be. I am having such a hard time accepting that ALS is the most likely outcome.
Thanks again everyone for reading this.