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JustOne

New member
Joined
Feb 4, 2014
Messages
2
Reason
Loved one DX
Country
UAE
State
Dubai
City
Dubai
Hi...

I'm new, and I don't have ALS, but a member of my immediate family might. He told us he thinks he has it about 2 months ago, but we really thought it was in his head at first (i believe him now). He complains of random twitches (both arms, both legs) and general muscle weakness, and pain in his hands and shoulders. He also complains of an ear flutter, and says that is what made him believe he has it. He has seen two doctors who said (almost literally) that he's crazy. But he has a coworker who had it and passed away from it and he is convinced that some environmental factor at work is the cause.

Also we live in the middle east - diagnosis here is not easy, the specialists are few and far between. He aims to travel in April to get the tests done back home (in Canada)... But as I understand it, things could be pretty grim by then.

I'm trying ti understand his situation, but am still holding out on hope that it might be a vitamin D deficiency or something. What do you guys think?

Thanks.
 

JustOne

New member
Joined
Feb 4, 2014
Messages
2
Reason
Loved one DX
Country
UAE
State
Dubai
City
Dubai
Thank you.. Can you tell me which doctor/hospital? I would be grateful for some info..the two we've seen in Dubai didn't even suggest any tests.
 

Nok850

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Joined
Feb 1, 2014
Messages
5
Reason
Other
Country
US
State
Virginia
City
Richmond
Two months of twitching? Was that his first symptom? Also, is it clinical weakness?
 

AfraidButNotAlone

Senior member
Joined
Jul 27, 2013
Messages
533
Reason
PALS
Diagnosis
07/2013
Country
US
State
GA
City
Atlanta
Dr Iyad at Al Noor hospital on Khalifa St in AD.
He urged me to see a specialist in the US.
Did an EMG on all limbs
 
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