CaptainPlanet
Active member
- Joined
- Oct 26, 2014
- Messages
- 45
- Reason
- Learn about ALS
- Diagnosis
- 10/2014
- Country
- US
- State
- CA
- City
- San Pedro
Hey guys, been running from the dreaded ALS for a while now. It seems like it is inevitable at this point.
Presented with eye fatigue, breathing difficulty, and weakness in one of each limb. Twitches started in legs at the same time I noticed the llimb weakness.
Not much long later, I had emotional difficulties (was crying/laughing way too 'hard')
I was observed at memorial hospital and was immediately refered to a neuro after several blood panels.
Neuro just completed my EMG and was shocked. He my arm and leg were pretty bad but my lumbar made the machine go haywire. He suggested bulbar onset ALS, and is referring me to USC. I was also slurring my speech considerably by the EMG and the Dr kinda knew.
I've already spent my time crying and being afraid of the disease but have since found peace with it.
I spent years of my adult life sourrounded by various electronics, computers, and sound equipment. Not to mention wireless,bluetooth, and fios coax.
In addition to that, i lived in a house with black mold from a broken seweg pipe that leaked under my room. I read somehwere that high mold exposure and electromagnetic fields are suspected to have a connection with ALS.
So basically, in my mind, I gave it to myself by living in mold and electricity for years. That's the only thing I can think off that could have caused it in me being so young (26)
Any thoughts?
Presented with eye fatigue, breathing difficulty, and weakness in one of each limb. Twitches started in legs at the same time I noticed the llimb weakness.
Not much long later, I had emotional difficulties (was crying/laughing way too 'hard')
I was observed at memorial hospital and was immediately refered to a neuro after several blood panels.
Neuro just completed my EMG and was shocked. He my arm and leg were pretty bad but my lumbar made the machine go haywire. He suggested bulbar onset ALS, and is referring me to USC. I was also slurring my speech considerably by the EMG and the Dr kinda knew.
I've already spent my time crying and being afraid of the disease but have since found peace with it.
I spent years of my adult life sourrounded by various electronics, computers, and sound equipment. Not to mention wireless,bluetooth, and fios coax.
In addition to that, i lived in a house with black mold from a broken seweg pipe that leaked under my room. I read somehwere that high mold exposure and electromagnetic fields are suspected to have a connection with ALS.
So basically, in my mind, I gave it to myself by living in mold and electricity for years. That's the only thing I can think off that could have caused it in me being so young (26)
Any thoughts?