Dianee
New member
- Joined
- Jun 17, 2017
- Messages
- 9
- Reason
- Lost a loved one
- Diagnosis
- 04/2017
- Country
- US
- State
- PA
- City
- Kennet Square
My 70 year old brother in law went from having drop foot to being on a ventilator in about three months! He had been seeing doctors during the progression, but ALS wasn't diagnosed until late April. After three weeks in ICU, he was moved to an acute care
hospital where has spent two weeks while they unsuccessfully tried to wean him off ventilator. He was given a choice between Hospice, where they would make him comfortable and remove the vent, or long term care. He chose long term and was recently transferred to a nursing home for disabled people.
Needless to say, this disease is the cruelest thing to happen to
anyone. He can't eat, drink, talk,...He can think, see and hear and likely knows he will die in this hospital. My sister is tired from the past few months of watching him deteriorate so quickly. Now he has pain in one of his legs, which he never had before and had to wait untill it was time for his pain med.
Good Lord....I can't understand why he can't have as much as needed to help with pain.
The only positive in his story is that the VA is involved because he was a Vietnam Vet, but because this all happened so quickly, they haven't had time to approve his case yet.
I feel so helpless and sad for my sister and her daughters.
How does anyone cope with this disease?!!
hospital where has spent two weeks while they unsuccessfully tried to wean him off ventilator. He was given a choice between Hospice, where they would make him comfortable and remove the vent, or long term care. He chose long term and was recently transferred to a nursing home for disabled people.
Needless to say, this disease is the cruelest thing to happen to
anyone. He can't eat, drink, talk,...He can think, see and hear and likely knows he will die in this hospital. My sister is tired from the past few months of watching him deteriorate so quickly. Now he has pain in one of his legs, which he never had before and had to wait untill it was time for his pain med.
Good Lord....I can't understand why he can't have as much as needed to help with pain.
The only positive in his story is that the VA is involved because he was a Vietnam Vet, but because this all happened so quickly, they haven't had time to approve his case yet.
I feel so helpless and sad for my sister and her daughters.
How does anyone cope with this disease?!!