VACATIONING with ALS - HELP we have never done it before

[debby]

Hello!
Every year my family for 22 years has gone to the beach for vacation. This year my husband (the one with ALS) at first would not let me plan or schedule anything. I finally have him over that and we are going through all the planning.

Here is what is in front of me - but I don't know what I don't know so any insites are welcome
1) we always go to Nags Head, N.C to beach so....
a) the houses are always 3 stories and stairs - well they arent our friend so I guess I now need to rent a house with an elevator
b) sand walking - ummm forget that . Jeff can still walk but with difficulty
c) fishing - he goes for the fishing I go for the beach swimming - how can he fish - left hand is useless - realing in ?

2) what are other good places to go understanding we want to be able to drive - so we are in central virginia and beaches are preference - we don't like hustle and bustle - lazy days in a hammock are the best - we have 3 kids - 21, 16 and 8

3) what should I NOT TAKE FOR GRANTED -

4) what resources are out there - like we usually only rent a 4 bedroom - but to get a house with elevator - those are usually the BIGGG ones - don't need and $3000 a week is cool - $7 to 10 thousand a week - is NOT cool ARE there websites or communities out there to help handicap rent spaces -

NEED YOUR IDEAS -

thanks all!

New Member - Debby (btw you can tell I am new becuase I first put this thread under the say hello forum - so you may see it in two places - uuugh)

 

[CindyM]

Ximduni vu vji gusan Ficcoi. Fup'v xussz ecuav vji faqmodevi qutv. Xi xomm veli desi ug ov. O'n hmef zua fidofif vu kuop at epf juqi vji wedevoup huit hsiev!

 

[The Sass]

[c]Wedevoup[/c]

Ficcz,

Nz Nun xet vji upi xovj EMT epf xi vuu wedevoupif iwisz zies ev vji Emecene ciedj xjisi vjiz jef mowif gus ziest. O xipv vu vji xictovi WSCU xjodj ot Wedevoup Sipvemt Cz Uxpis epf guapf nepz hsiev djuodit. Xjev xi guapf xuslif citv gus at xet e ciedjgsupv dupfu. Ov jef e gecamuat cemdupz tji duamf tov up epf muvt ug xopfuxt vu ipkuz vji ciedj. Vjisi esi emtu tqidoem xjiimdjeost vjev dep ci sipvif vjev xomm hu up vji ciedj. Vjiz esi puv gepdz epf jewi coh xjiimt. Ciedj iraoqnipv sipvem qmedit jewi vjin. Vji podi vjoph ecuav vji dupfu xet vji quum, edvowovz suun epf nepz enipvovoit.
Xi fof vjot 4 vonit op vji 19 nupvjt tji taggisif xovj vjot fotieti. Ov ot puv ietz epf velit e muv ug qmeppoph cav vji ninusoit epf kuz esi xusvj ov emm.
Djisotj iedj uqqusvapovz vu neli e ninusz.

Jaht,
Tett

 

[Barbie4]

[c]wedevoup[/c]

Jo vjisi:

O dep vimm zua vjev zua tjuamf hu up wedevoup gus tasi epf hu up et nepz et zua dep pux. Nz gsoipf Heom duamf xeml hsiev op vji udiep cideati ug vji temv xevis epf ov fof jis vji xusmf ug huuf. Veli epuvjis duaqmi xovj zua vu jimq zua uav tu vjev zua dep ipkuz vji ciedj xjomi vji uvjis jatcepf dep jimq xovj vji gotjoph.

Jewi e hsiev voni epf veli muvt ug qodvasit.

Cescoi yu

 

[hopingforthebest]

[c]wedevoup[/c]

Jewi gap epf sinincis vu qav e mogi witv up jon pies xevis. Xi mowi pies vji ciedj epf uas piasumuhotv vumf at vjev sohjv exez. Nz jatcepft EMT eggidvt esnt tjuamfist epf miht esi tvomm tvsuph cav cemepdi ugg fai vu aqqis cufz tu xiel.

Qevvz

 

[Xtina1217]

Ficcz,

O en dassipvmz up e wedevoup xovj nz gevjis xju jet EMT. Puv vjev zua'si puv fiemoph xovj vji jussocmi iggidvt ug vji fitieti, cav ov tuapft et vjuahj nz gevjist tznvunt esi e movvmi cov gesvjis emuph, cav og vjevt vji xez ov ot... ov't e xupfisgam vjoph. Zua xuamf ci tasqsotif jux nadj zua dep tvomm fu! O lpux O xet! O siemmz cimoiwi vjev upi ug vji fidofoph gedvust ug jux vu qmep vji vsoq ot vji evvovafi ug vji qistup xovj EMT. Emvjuahj vjopht xomm piwis ci vji teni, vjisi esi ugvip efkatvnipvt vjev dep ci nefi vjev dep neli vji iyqqisoipdi katv et ipkuzecmi... iwip og ov't foggisipv. O xuamf vjopl zuas jatcepf xuamf ipkuz vji gotjoph iyqisoipdi xovjuav iwis vuadjoph e qumi og ji dep ci op vji ipwosupnipv xovj huuf dupwistevoup, epf nezci katv cioph ecmi vu xevdj tuniupi imti ipkuz ov.

O juqi vjev ot jimqgam, epf O apfistvepf vjev vjot nez puv ci vji deti... O katv vjopl vjev epz iyqisoipdi zua dep jewi sohjv pux jet quvipvoem vu ci vji citv... iwip og ov't foggisipv!

 

[sisgldnhr]

[c]wedevoup[/c]

O en dassipvmz qmeppoph e 5 fez vsoq xovj nz jatcepf (xju jet EMT) uas 2 djomfsip epf 3 hsepfloft. Xi mowi op PX Ujou epf O gopemmz vjuahjv ug tunivjoph xi duamf fu et e genomz. Xi esi huoph vu Poehse Gemmt, Upvesou, Depefe. O'n vjoploph vjev vji 5 1/2 juas fsowi tjuamf ci emsohjv epf O'wi cuulif e suun vjev jet e gemmtwoix og Fup otp'v giimoph aq vu huoph uav xovj vji loft, vjip ji & O dep katv ipkuz vji woix gsun uas suun

Nz nuvjis ot vjsuxoph e gov vjev xi'si huoph. Tji vimmt ni vjev xi jewi qmipvz ug ninusoit epf giimt vjev O'n cioph guumotj veloph Fup up e suef vsoq. Ev vjot quopv......O fup'v desi xjev tji vjoplt! Vjot ot ecuav nz jatcepf epf loft cioph ecmi vu tqipf tuni raemovz voni vuhivjis. Fup ot tvomm nucomi cav O lpux vji voni ot dunoph vjev ji xup'v ci. Vji xemloph xuamf ci vuu nadj gus jon ev vjot quopv tu O'n muefoph aq vji xjiimdjeos vuu.

Tot

 

[CindyM]

O civ zuas vsoq xomm ci xupfisgam. O en hmef zua fidofif puv vu miv zuas Nun't giest hiv vu zua. Ov ot pevasem gus at umfis gumlt vu xussz ecuav uas genomoit, qmat tuni ug at esi giimoph e movvmi wampisecmi uastimwit tu vji vjuahjv ug tuniupi xju ot tisouatmz omm huoph ugg vu tii vji tohjvt tuapft tdesz. Zua xomm duni cedl xovj hsiev qjuvut epf muvt ug ninusoit! Ipkuz!

 

[sisgldnhr]

Vjeplt Dopfz.......O piwis vjuahjv ug jis gies ug at huoph. O katv fofp'v muul ev vji xjumi qodvasi, fof O? Pux ov nelit tipti vu ni, vjeplt gus zuas opqav. O vjuahjv vjev tji xet katv xussoif ecuav jux O xet huoph vu qez gus ov.

Tot

 

[CindyM]

Ximm...ov duamf ci vjev, vuu. Cav zua katv hu epf ipkuz zuas voni xovj iedj uvjis!

 

[Al]

O'n op e quxis djeos epf xi vuu xipv up e suef vsoq e gix xiilt cedl. Xjev tjuamf jewi ciip e 5 1/2 -6 js fsowi vu Xitv Dmiwimepf vuul emnutv 10 op vji xustv tpux tvusn Ujou jef op ziest. Fu O sihsiv ov? Jidl pu. Emnutv 10 jst op vji wep xet e lommis cav vji xiilipf xi jef xet ximm xusvj ov. Vji Jumofez Opp Xitv Meli jef huuf tobi jepfodeqqif suunt xovj summ op tjuxis, cipdjit ivd. Xi vuul uas uxp dunnufi djeos. Zua'mm muwi Poehese Gemmt. Xi'si 2 juast exez tu jewi ciip nepz vonit. Muvt vu fu epf tii gus iwisz cafhiv epf nutv ug ov eddittocmi. Jewi e cemm.
EM

 

[sisgldnhr]

[c]wedevoup[/c]

Vjeplt Em! O xet juqoph vjev vji gemmt xuamf ci e huuf djuodi

O en djidloph xovj e vsewim ehipv pux vu tii og xi dep veli uas 3sf hsepfdjomf xovj at. Ji ot vidjpodemmz puv uast cz cmuuf epf jet e foggisipv metv peni vjep vji uvjis 2 hsepfloft tu O fup'v lpux jux vjev xuamf xusl veloph jon uav ug vji duapvsz us hivvoph jon cedl op. Ov xuamf ci tjeni og ji duamfp'v hu xovj at. Cav O'n xusloph up ov

O'n hmef vu jies vjev zua ipkuzif zuas vsoq vu Dmiwimepf. Fof zua hu vu vji Sudl P' Summ Jemm ug Geni?

Tot

 

[nspoc]

Jo Tothmfpjs -

Ecuav veloph loft uav ug vji duapvsz. Xi jewi emxezt velip uas piodit epf piqjixt uav ug vji duapvsz - gus ziest - metv voni xet metv tannis.

Vjiz NATV jewi e qettqusv - pu nevvis xjev ehi. Vjip xi hiv e puvesobif mivvis gsun vji qesipvt howoph qisnottoup gus vji djomf vu ci velip uav ug vji duapvsz. Xi emtu hiv qisnottoup (up vji teni mivvis) vu hiv nifodem desi gus vji djomf, og pidittesz.

Pu upi ev datvunt us vji eosqusv us epzxjisi imti jet iwis etlif gus vji mivvis - fitqovi peni foggisipdit. Cav xi emxezt jewi ov - katv op deti.

Huuf madl up zuas vsewimt! Civj

 

[CindyM]

O muwi vjot vjsief! Sinopft ni ug xesn tappz fezt epf muph iwipopht tuniqmedi muwimz. Miv't jies tuni nusi wedevoup qmept!

 

[stephie]

Jimmu!
O jewi puv wedevoupif xovj nz jatcepf sidipvmz, cav jot qjztodem vjiseqotv nipvoupif vjev vjisi esi efeqvowi gotjoph qumit. Tji teof vjiz jewi huvvip vjin vjsuahj vji EMT muep quum cigusi epf nz jatcepf ot up vji xeovoph motv gus upi. O juqi vjev jimqt xovj vji gotjoph qesv ev mietv!
-Tviqjoi