User NewDay, My Mother Passed a year ago.. to ALS

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AdamB

New member
Joined
Dec 11, 2010
Messages
2
Reason
Loved one DX
Country
US
State
ny
Hello all.

My mother user NewDay, Who posted a few posts on this website. She passed away Sept of 2011. We all miss her.

Just figured i would write. She was a fighter, Lasted almost 20 years with no Vent or feeding tube. She wanted to see her children grow up & believe me she did.

I have been wanting to start an Org in my mothers name, to help supply communication devices to those who have none. That Dynavox device changed my mother life, i would like to help others obtain a device & proper training..

She was strong, she was inspirational, She was a great person. she will be missed.

She wrote a book about ALS, It is on her Dynavox 3100 system, I am having trouble getting it off, any ideas?


here are 2 posts by her

https://www.alsforums.com/forum/people-als-pals/14873-my-letter-als.html

https://www.alsforums.com/forum/people-als-pals/13298-hi-all-i-have-had-als-18-years.html
 

laurel

Very helpful member
Joined
Jul 19, 2007
Messages
1,431
Reason
Friend was DX
Country
CA
State
BC
Adam I am sorry I missed seeing your post on New Year's Eve. I do remember reading your mother's posts. I am so sorry that you have lost her. She sounded like a real fighter and a remarkable person. I don't have an answer about the Dynavox--maybe someone else will know and respond. What a good son your are to write to us and to honour her with your words. All the best to you and Happy New Year too.

Laurel
 
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