apollick
Active member
- Joined
- Jun 12, 2011
- Messages
- 65
- Reason
- Lost a loved one
- Diagnosis
- 05/2009
- Country
- US
- State
- Florida
- City
- Groveland
Urge Congress to Support the National ALS Registry
We need your help TODAY to continue funding for the National ALS Registry. U.S. Representatives Eliot Engel (D-NY) and Peter King (R-NY) are circulating a letter requesting the House Appropriations Committee provide $10 million in funding for the Registry next year. We urge you to contact your Representatives today to request that they sign onto this critical letter and support their constituents in the fight for a treatment and cure for Lou Gehrig's Disease. The text of the Engel-King "Dear Colleague" letter is available by clicking here.
Representatives Engel and King have set a deadline of March 16, 2012 for signing onto the letter. So please contact your Representative TODAY!
While Congress has supported the Registry in the past, we cannot assume the funding will continue. That's because there are many other programs competing for scarce dollars and the current economic and partisan climate present additional challenges to securing continued funding for the Registry. Therefore, it is vital that you contact Congress TODAY. And tell your family, friends, and colleagues to do the same. Your outreach can help ensure that we can realize the goals of the ALS Registry - to help identify what causes ALS, how it can be treated or even prevented from occurring in the first place.
If you have any questions or would like assistance reaching out to your Representative, please contact us at [email protected] or toll-free at 1-877-444-ALSA.
I hope I have posted this in the right place.
We need your help TODAY to continue funding for the National ALS Registry. U.S. Representatives Eliot Engel (D-NY) and Peter King (R-NY) are circulating a letter requesting the House Appropriations Committee provide $10 million in funding for the Registry next year. We urge you to contact your Representatives today to request that they sign onto this critical letter and support their constituents in the fight for a treatment and cure for Lou Gehrig's Disease. The text of the Engel-King "Dear Colleague" letter is available by clicking here.
Representatives Engel and King have set a deadline of March 16, 2012 for signing onto the letter. So please contact your Representative TODAY!
While Congress has supported the Registry in the past, we cannot assume the funding will continue. That's because there are many other programs competing for scarce dollars and the current economic and partisan climate present additional challenges to securing continued funding for the Registry. Therefore, it is vital that you contact Congress TODAY. And tell your family, friends, and colleagues to do the same. Your outreach can help ensure that we can realize the goals of the ALS Registry - to help identify what causes ALS, how it can be treated or even prevented from occurring in the first place.
If you have any questions or would like assistance reaching out to your Representative, please contact us at [email protected] or toll-free at 1-877-444-ALSA.
I hope I have posted this in the right place.
