robc
Active member
- Joined
- Jan 23, 2007
- Messages
- 47
- Reason
- DX UMND/PLS
- Country
- US
- State
- Oregon
- City
- Silverton
I've found very little information on Upper Motor Neuron onset ALS. Did anyone here have UMN onset? At this point I have definite upper motor neuron involvement plus fasiculations & lower motor neuron indicators on my muscle biopsy (fiber type grouping, atrophy, past dennervation/reinnervation), but so far basically normal EMGs.
I'm would love to hear from someone who has experience with or some information on upper motor neuron onset ALS or upper motor neuron predominant ALS. I understand that UMN predominant ALS usually has a slower onset and progression than Lower Motor Neuron onset ALS, but haven't been able to find any info that quantifies this.
Thanks!
-Rob
(I'm 35 with spasticity, fasiculations, cramps, fatigue. I have lost muscle mass but unsure if it is atrophy due to reduced use or neuro atrophy at this point).
I'm would love to hear from someone who has experience with or some information on upper motor neuron onset ALS or upper motor neuron predominant ALS. I understand that UMN predominant ALS usually has a slower onset and progression than Lower Motor Neuron onset ALS, but haven't been able to find any info that quantifies this.
Thanks!
-Rob
(I'm 35 with spasticity, fasiculations, cramps, fatigue. I have lost muscle mass but unsure if it is atrophy due to reduced use or neuro atrophy at this point).