Micheline
Active member
- Joined
- Sep 23, 2008
- Messages
- 81
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- CA
- State
- British Columbia
- City
- Campbell River
Well, sorry I haven't posted in a very long time. :?: Our last visit to the ALS clinic was ok, we took our kids with us, they didn't say much but did talk a little with the social worker. (teenagers :roll. My left arm has been decreasing, i am not able to lift anything over 1 ltr or even above my shoulder. Since then my right arm is starting to decrease as well. bummer. Thank goodness for spell check...lol My breathing dropped from 104% -91%, but was told still good.
I have upped my home support to 3 times a day. Man, that service I was not looking forward to. The home support people have complained about my transferring onto the toilet. Told my OT as we wait for the estimate and install date for the lift in the bathroom.
Since, i have been having so many issues transferring, I had to cancel my respirologist appiontment, contacting my ALS team and inform them I will not be going anymore. It's way to hard on my husband to do it, and if I end up hurting him i would never forgive myself.
we are going to try to get to the walk, keeping my fingers crossed, but it looks like I'm stuck in this town that i donot like, never liked...crap!
well that's it for now, have an awesome day everyone :-D
Micheline
I have upped my home support to 3 times a day. Man, that service I was not looking forward to. The home support people have complained about my transferring onto the toilet. Told my OT as we wait for the estimate and install date for the lift in the bathroom.
Since, i have been having so many issues transferring, I had to cancel my respirologist appiontment, contacting my ALS team and inform them I will not be going anymore. It's way to hard on my husband to do it, and if I end up hurting him i would never forgive myself.
we are going to try to get to the walk, keeping my fingers crossed, but it looks like I'm stuck in this town that i donot like, never liked...crap!
well that's it for now, have an awesome day everyone :-D
Micheline
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