Update

Status
Not open for further replies.

bme999

New member
Joined
Jun 4, 2024
Messages
6
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
IL
City
Sandwich
Hello I just wanted to give an update.(past thread here) I did have my EMG (no ALS) i will post the results.

Fast forward to now I am still having issue's. Symptoms have progressed dysphagia has gotten worse. I am having internal tremors all over and balance issues and twitching, dry mouth and eyes blinking constantly, twiching in eye lid and lips. Can't adjust eyes to light changes, blood pressure changes constantly, digestive system has slowed down and have urgency to urinate alot. I sigh all the time, legs and arm muscles still shake like they are fatigued, and I shake when I pick something heavy up. Cognitive issues forgetting alot. I have thumb tightness in right one now it's starting in left thumb.

Saw a rheumatologist- normal blood work. I saw endocrinologist- normal blood work. I did thyroid ultrasound- normal.
I did esophagram- Mild delay of clearing of contrast from the esophagus in the prone position. I'm not sure what to do from here, just wait and see I guess.

To me its looking more like MSA, which can kinda mimic ALS, but the neurologist said it would have shown something on emg. But i have read msa doesnt show on emg because it has to to with the cns. I just wanted to give an update thank you for all you have helped.
 

Attachments

  • Screenshot_20250312_180152_Photos.jpg
    Screenshot_20250312_180152_Photos.jpg
    462.7 KB · Views: 86
Last edited by a moderator:
Status
Not open for further replies.
Back
Top