janicebuf
Active member
- Joined
- Jul 6, 2005
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- east amherst
hi everyone, i don't know if you remember me but my brother was the one who had the 'bulbar' sympotoms a few months ago. i wrote about him and you all were so helpful.
we just found out for sure he does have als. he is 46 years old and i don't know what to say to him! i am so disgusted with this disease and wish they'd find a cure. we spend millions to fight a needless war and yet can't find help for als. obviously i am angry as we have lost more than 20 family members at this point, all in their prime. he will be going to syracuse and hopefully get in the clinical trial of ceftriaxone (sp?) the dr. thinks it may be slower progressing than typical in my family. how the heck does he know that? he noticed symptoms in april and right now he can eat ok and his speech is somewhat warbled but it has gotten worse for sure since april. any advice anyone? thanks.
we just found out for sure he does have als. he is 46 years old and i don't know what to say to him! i am so disgusted with this disease and wish they'd find a cure. we spend millions to fight a needless war and yet can't find help for als. obviously i am angry as we have lost more than 20 family members at this point, all in their prime. he will be going to syracuse and hopefully get in the clinical trial of ceftriaxone (sp?) the dr. thinks it may be slower progressing than typical in my family. how the heck does he know that? he noticed symptoms in april and right now he can eat ok and his speech is somewhat warbled but it has gotten worse for sure since april. any advice anyone? thanks.