Update

[robertmanville]

Good Morning,
I posted a few months ago. I tend to have ups and downs with my symptoms. Rheumy thinks i have an inflammatory arthritis. I have two follow up questions - I hope you can take the time to answer them to provide me with some peace of mind:
A- I have a constant dull ache around my wrists - all the time and my hands falls asleep at night. The feeling gets betters when I wear a wrist band. Is this something common?
B- I still after two years of symptoms have a dull ache near my hamstring. It hurts when I walk or sit in particular.
C- when I wake up in the morning, I have bad Achilles heel pain that gets better throughout the day but I still have a weird numb sensation in my feet.
I have not lost any function and feel I got to the bottom of my issues but get second doubts because so many symptoms overlap with ALS.
Thank you for your time.

 

[Nikki J]

I don’t believe any of those relate to ALS so unclear why you speak of overlap with ALS. Are there PALS who get those symptoms? I expect so we aren’t immune from other issues.
the hallmark of ALS is clinical weakness ( failure). You have a working diagnosis that is more consistent with your symptoms follow your doctor’s advice

 

[Bestfriends14]

What has your neuromuscular said? Have you sought one out? None of your symptoms overlap with ALS, so you can take that worry off the table.

 

[robertmanville]

Hello Best,
I went to a neuro 24 months ago. Just walked in got an appointment and he scared the me after doing the emg so I left after he told me I had an abnormal emg in my left leg which is the reason why I went to meet him in the first place. Every time I would sit, I would have to take off my shoe because my foot would fall asleep. Also when I would bend forward to pickup my kid, I would lose full strength in my left leg. I went to another neuro a few months later. He was much nicer. He did the same test and said he wasn’t concerned at all but I never got the results. That was 22 months ago or so. Fast forward to today, I am still able to work and do everything but I get severe fatigue spurts, tendon pain especially in my Achilles hamstring and wrist. My rheumy said he was sur I had an inflammation illness but what bugs me is the first neuro I met two years ago. Should have never walked in. I should have followed the steps rather than by passing my gp. That’s the story. I’m realize als goes downwards. 24 months ago I felt like I couldn’t even shave or pick anything up. Now I can but with regular muscle fatigue. But after rest I feel normal. It’s a yo-yo. What concerns me is that everything I have leads back to als. Take for instance the wrist pain. I feel I have tendinitis but when I read online it’s very similar to carpal which seems to have lots of misdiagnosis to als. I get relief when I wrap a band around my wrist. Same for butt pain and Achilles but when I read, maybe the tightness from my als is causing this????
I walked into the neuro muscular doc 24 months ago without my gp because I was concerned of the pain and weird feelings. It wasn’t because I couldn’t move or lost function.
Help please.

 

[Bestfriends14]

Sounds nothing at all like ALS. EMGs can be abnormal for many, many reasons and the last being ALS. Hope that helps. Anything further should really be addressed by a professional knowledgeable in whatever is going on with you (NOT ALS).

Good luck to you.

 

[ShiftKicker]

closed for multi