Update...

Jamesgol

Active member
Joined
Dec 21, 2018
Messages
38
Reason
PALS
Diagnosis
12/2018
Country
US
State
OK
I haven't been on in a while. ALS continues to rob me of function. I have lost all use of my arms and legs. I only have small bit of function in my right hand. I have just started to have bulbar involvement.

Last week I signed with Hospice. This way my NP wife will get some help and respite care will give her a break

Pain is getting much worse. I've tried everything. I'm up to 10 mg Norco 6x day.

I've had ALS for years, but the past 6 months it has really accelerated.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,477
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
I am so sorry you are in pain. Have you explored medical marijuana which looks legal in your state? Many here and elsewhere have said it helps

I hope hospice bring comfort and help to both of you
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,138
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
Sorry to hear about your progression, James. I hope hospice helps both you and your wife in many ways.
 

nona

Active member
Joined
Oct 1, 2018
Messages
91
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
Thinking of you, James. We are here with you in solidarity. Pain sucks, and I'm sorry you've had to deal with that.
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
156
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
ALS sucks, James. Our thoughts are with you and your wife. Here's hoping hospice helps you both.
 

ReginaS

Forum Supporter
Distinguished member
Joined
Nov 20, 2018
Messages
127
Reason
Lost a loved one
Diagnosis
02/2018
Country
US
State
LL
Thanks for the update James. So sorry to hear about your pain. I sure hope you will find good medication. For us, hospice was good. Hope it will be a good experience for you too.
 
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