MarciaA
Distinguished member
- Joined
- Mar 13, 2006
- Messages
- 118
- Reason
- PALS
- Country
- US
- State
- MN
- City
- Owatonna
It's been so long since I've posted...so long that when I glanced through the various recent postings, there were so many new names that I don't know...but I know there may be some of you out there who might remember me. My sister, Kathy, was diagnosed in Feb of 2006. She now has a home health care person who is with her during the day. She can't transfer without the hoyer lift or her new device that she calls her "Barbie stand" (no offense Barb!
). She started using a Bi-PAP at night about a week ago...breathing percentage down to 47%. She wasn't real satisfied with it right away...puffed out her cheeks by morning and dried out her mouth something fierce. They were going to look into the settings on it and perhaps look at how well the mask fits her. Any advice about it?
Next week Tuesday (Nov 27) she has surgery to put in a feeding tube. She can still chew and swallow, but is having it put in now before her breathing gets worse. For a while she wasn't going to get the tube at all...at least now she'll be able to use it if she wants to...
This whole ALS ride is going far too fast for my liking! I'd like a refund, please! I was hoping for a more gentle, slow-paced ride that went on, and on, and on...
Guess not.
It would be great to hear from those of you that helped me so much over these last 2 years! You are all in my thoughts and prayers!
Marcia
This whole ALS ride is going far too fast for my liking! I'd like a refund, please! I was hoping for a more gentle, slow-paced ride that went on, and on, and on...
Guess not.
It would be great to hear from those of you that helped me so much over these last 2 years! You are all in my thoughts and prayers!
Marcia