I haven't posted for awhile because Sara and myself have been waiting to see the neuro again. We went last week and the good news is she certainly doesn't have ALS.
Her blood test came back with slightly elevated muscle enzymes. The doc didn't specify which so I don't know if he was referring to CK or what. While this rules out the worst, it still leaves open alot of uncertainty. On one side, this could be a treatable autoimmune disorder, on the other it could be untreatable MD. She has no history of MD in her family but the neuro said in rare cases spontaneous mutations do occur. She had an EMG today and we have to go back on Monday for the results.
Of coarse the cycle has just started over again, since the neuro said the EMG may not be conclusive. If it isn't, she will have a muscle biopsy, which also may be inconclusive.
I am very thankful that she doesn't have ALS though, and I would really like to thank everyone on this board who has given us advice. God bless and good luck to you all.
Her blood test came back with slightly elevated muscle enzymes. The doc didn't specify which so I don't know if he was referring to CK or what. While this rules out the worst, it still leaves open alot of uncertainty. On one side, this could be a treatable autoimmune disorder, on the other it could be untreatable MD. She has no history of MD in her family but the neuro said in rare cases spontaneous mutations do occur. She had an EMG today and we have to go back on Monday for the results.
Of coarse the cycle has just started over again, since the neuro said the EMG may not be conclusive. If it isn't, she will have a muscle biopsy, which also may be inconclusive.
I am very thankful that she doesn't have ALS though, and I would really like to thank everyone on this board who has given us advice. God bless and good luck to you all.