rix94
New member
- Joined
- Apr 17, 2018
- Messages
- 9
- Reason
- Other
- Country
- US
- State
- North Carolina
- City
- Raleigh
https://www.alsforums.com/forum/do-i-have-als-als/41324-just-need-relief.html
The above thread is my original thread, which has since been closed.
Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw my primary care physician, and was started on an aggressive vitamin D supplementation because I had a vitamin D score of about 17 -- which was rather low. I had also made an appointment with the Eastern Neurology and Neuromuscular Center here in Eastern North Carolina. I saw the neurologist, and my reflexes were all normal and she told me that nothing seemed wrong and to just see if the vitamin D supplement (50000 IU -- once a week) helped with the fasciculations.
I'm about three supplement pills away from being finished with the treatment, but still am twitching (generalized/body-wide) with some slight joint pain and sore areas -- but I do know that pain is not indicative of ALS so that doesn't concern me.
Therefore, I really am only here for some advice. I have a follow-up with the neurologist on Friday, and was just curious if I should pursue/request an EMG just to be certain? I have noticed I wake up with rather stiff and painful shoulders, and lower back pain, so it might be worth asking to get an MRI since it could be related to that? Not to mention neck pain and a headache that usually situates itself behind my left eye and radiates to the neck -- but I have had that for quite some time now.
Just thought I'd get an opinion from here again, since y'all were so helpful the last time. I know my age significantly lessens the risk, and that twitching alone is non-specific, but since it is still going on even after the vitamin D and multi-vitamin treatment, I just am a little concerned again.
Thanks so much,
Charles
The above thread is my original thread, which has since been closed.
Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw my primary care physician, and was started on an aggressive vitamin D supplementation because I had a vitamin D score of about 17 -- which was rather low. I had also made an appointment with the Eastern Neurology and Neuromuscular Center here in Eastern North Carolina. I saw the neurologist, and my reflexes were all normal and she told me that nothing seemed wrong and to just see if the vitamin D supplement (50000 IU -- once a week) helped with the fasciculations.
I'm about three supplement pills away from being finished with the treatment, but still am twitching (generalized/body-wide) with some slight joint pain and sore areas -- but I do know that pain is not indicative of ALS so that doesn't concern me.
Therefore, I really am only here for some advice. I have a follow-up with the neurologist on Friday, and was just curious if I should pursue/request an EMG just to be certain? I have noticed I wake up with rather stiff and painful shoulders, and lower back pain, so it might be worth asking to get an MRI since it could be related to that? Not to mention neck pain and a headache that usually situates itself behind my left eye and radiates to the neck -- but I have had that for quite some time now.
Just thought I'd get an opinion from here again, since y'all were so helpful the last time. I know my age significantly lessens the risk, and that twitching alone is non-specific, but since it is still going on even after the vitamin D and multi-vitamin treatment, I just am a little concerned again.
Thanks so much,
Charles