Lizzypip68
Member
- Joined
- Jun 18, 2017
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Bournmouth
Hi again everyone, I posted on here a couple of months ago regarding concerning symptoms but the thread is now closed; I feel my symptoms are progressing so am posting an update in the hope that someone can give me their insight as I remain very concerned.
On my last neurologist appointment 3 weeks ago he did a full examination and noted muscle wastage in my left calf along with slight wastage along the inside of the same foot, big toe side. Both ankle and knee reflexes were suppressed, and my leg raise was indicative of an S1 nerve root problem. He referred to my EMG test done in June 17 and said the results backed up this diagnosis. At the time he could see fasiculations in my left calf and foot and noted some movements elsewhere but felt these were more like myoclonic jerks; an MRI scan has been ordered which is in 3 weeks time.
Since then the fasiculations have increased in intensity and have moved upwards to include the inner side of my knee/thigh area. These are very strong in intensity and the whole area seems to be pulsing with twitches very visible through my clothes. The whole leg feels like it is plugged in to an electricity socket with the twitching never stopping and varying degrees of pain throughout the day. I am sporadically aware of twitching elsewhere throughout my body, am struggling to sleep and and remain extremely concerned that this progression of symptoms could be indicative of MND/ALS.
My neurologist did say that there is usually no pain with ALS and also that the fasiculations caused by ALS are usually not felt. He was reassuring but as he made his diagnosis based on no evidence of further fasiculations I am terrified that this new twitching alters things.
Please could anyone offer any insight as I am a nervous wreck; I am a 49 year old single mum and obviously terribly concerned.
Thank you so much.
On my last neurologist appointment 3 weeks ago he did a full examination and noted muscle wastage in my left calf along with slight wastage along the inside of the same foot, big toe side. Both ankle and knee reflexes were suppressed, and my leg raise was indicative of an S1 nerve root problem. He referred to my EMG test done in June 17 and said the results backed up this diagnosis. At the time he could see fasiculations in my left calf and foot and noted some movements elsewhere but felt these were more like myoclonic jerks; an MRI scan has been ordered which is in 3 weeks time.
Since then the fasiculations have increased in intensity and have moved upwards to include the inner side of my knee/thigh area. These are very strong in intensity and the whole area seems to be pulsing with twitches very visible through my clothes. The whole leg feels like it is plugged in to an electricity socket with the twitching never stopping and varying degrees of pain throughout the day. I am sporadically aware of twitching elsewhere throughout my body, am struggling to sleep and and remain extremely concerned that this progression of symptoms could be indicative of MND/ALS.
My neurologist did say that there is usually no pain with ALS and also that the fasiculations caused by ALS are usually not felt. He was reassuring but as he made his diagnosis based on no evidence of further fasiculations I am terrified that this new twitching alters things.
Please could anyone offer any insight as I am a nervous wreck; I am a 49 year old single mum and obviously terribly concerned.
Thank you so much.