lhagsjr
Distinguished member
- Joined
- Apr 25, 2007
- Messages
- 173
- Country
- US
- State
- PA
- City
- Philadelphia
Well, as most of you know I was dismissed by one of the Top ALS docs in the Northeast US on August 28. When dismissing me, he offered to send me to another doc for a 2nd opinion.(Really a 3rd Opinion, my local neuro referred me to him). I didnt take him up on his offer until this week. I made an appointment today, and got it for get it, this coming Tuesday(23rd). Dr. Marinos Dalakas from Jefferson Hospital here in Philadelphia. Does anyone know anything about him? My basics 3 symptoms still are present:
1.) Atrophy: most concerning to me. (although all docs have disputed it)
2.) Twitching: frequency has actually lowered slightly.
3.) Popping and cracking of all joints(is this related? I dunno. Could muscle loss cause this? I dunno)
So, anyway. I dont expect much to come of this appointment as it actually feels like a step down as from as the level of the Dr. Oh well, have to try to get some kind of answer. Honestly, I think its ALS but hopefully they find something else(EVENTUALLY)....
~Lou
1.) Atrophy: most concerning to me. (although all docs have disputed it)
2.) Twitching: frequency has actually lowered slightly.
3.) Popping and cracking of all joints(is this related? I dunno. Could muscle loss cause this? I dunno)
So, anyway. I dont expect much to come of this appointment as it actually feels like a step down as from as the level of the Dr. Oh well, have to try to get some kind of answer. Honestly, I think its ALS but hopefully they find something else(EVENTUALLY)....
~Lou