JennyC
Distinguished member
- Joined
- May 3, 2016
- Messages
- 232
- Reason
- Loved one DX
- Diagnosis
- 04/2016
- Country
- US
- State
- NY
- City
- Queensbury
Update on my mom, she continues to decline quickly. She is now exclusively in a wheelchair as she can no longer use the rollator. She has a home health aid that comes in two times a week for two hours in the mornings but home health aids are expensive. My mom doesn't qualify for palliative or hospice care yet which is amazing to me. Her pulmonary numbers disqualify her right now. So its a family scramble to try to care for her. The Aunt that she lives with is going back on the road for work next week and will be gone Tuesday through Friday. My Uncle will be there other than for a short time very early morning and a few hours in the afternoon as he is a school bus driver. He will retire in January which is good but mom still won't let him help with toileting, bathing and such which is understandable but still really difficult.
At this point we use a pivot transfer disc to get her from chair to chari or toilet and we have a rolling shower chair. I also got her a beasy board but we haven't used it yet.
She and my Aunt caught a cold so i can't go down there this week, I have a compromised immune system and I have brain surgery (nothing big, just a shunt) on Thursday so I can't get sick, I won't be able to help with her other than cooking and such for at least 3 weeks which puts stress on the rest of the family.
Her speech is pretty bad now and its very difficult to understand her, I'm trying to talk her into some sort of communication device or word board, at least just to have handy for when we can't figure out what she is saying.
Her mood is pretty good though, they have her on two antidepressants now.
Wow I have to stop writing as I am writing a whole book! I'm sorry I haven't been around more to be of more support to others.
At this point we use a pivot transfer disc to get her from chair to chari or toilet and we have a rolling shower chair. I also got her a beasy board but we haven't used it yet.
She and my Aunt caught a cold so i can't go down there this week, I have a compromised immune system and I have brain surgery (nothing big, just a shunt) on Thursday so I can't get sick, I won't be able to help with her other than cooking and such for at least 3 weeks which puts stress on the rest of the family.
Her speech is pretty bad now and its very difficult to understand her, I'm trying to talk her into some sort of communication device or word board, at least just to have handy for when we can't figure out what she is saying.
Her mood is pretty good though, they have her on two antidepressants now.
Wow I have to stop writing as I am writing a whole book! I'm sorry I haven't been around more to be of more support to others.