I am always unsure of where and how I am supposed to speak, as all this is new to me. Forgive me if I talk in the wrong place..... My husband Rick hasn't ever had any pain with ALS. His blood test and EMG show motor neuron disease. He has twitches in his legs in the evenings... he has muscle deterioration in his legs. He staggers when he walks. He has excessive loose congestion in his head every morning. He cannot get up from a low chair or toilet without the use of his hands, and sometimes still cannot get up. He coughs if he laughs. He makes little clicking sounds in his throat sometimes.... but he never has had any pain. In fact, when he was in an explosion that took part of his leg, he has had relatively no pain. He has had five surgeries on that leg to save it (bone grafts) and has had a few minor surgeries without any anesthesia and feels no pain. I consider it a blessing that he has ALS and that's probably the reason he has no pain. The doctors say that no pain is bad. They don't know how I would suffer if I saw Rick suffer. He is a special person. He is HAPPY with his life.... our marriage and all we enjoy together. Rick was given one prescription back in July when the explosion happened. The Percoset (SP) has been sitting on the counter with only 2 pills taken from it. He only takes extra strength Tylenol once in a while. I have no idea why he is pain free, but I thank God daily. My wishes for blessing to you all. ........and one other comment. I knew a person with Parkinson's who could be given no more hope of survival and was taken off all food... and I think water. He lived 3 weeks. His wife nearly had a nervous breakdown. She opposed the decision but the children overrode her. Marjorie