trying to stay positive
Distinguished member
- Joined
- Sep 17, 2007
- Messages
- 313
- Reason
- CALS
- Diagnosis
- 08/2007
- Country
- US
- State
- Illinois
- City
- Chicago area
I received this from the Les Turner ALS Foundation today. I not only contacted Dick Durbin, my Senator that voted for this to thank him, but also contacted Barrack Obama who did not vote. I sent him a picture of my family & invited him to spend a few hours with my family. I told him that if he saw the devastation that ALS creates that he would find it impossible to ignore this much needed legislation. I also told him that I voted for him in the Democratic Primary & that I was very dissapointed that he did not vote on this!
Update on the ALS Registry Act
By a tally of 52-40, the Senate voted yesterday against proceeding to debate on S. 3297, the Advancing America's Priorities Act, which included the ALS Registry Act. Unfortunately, this is eight votes short of the 60 required for the Senate to begin consideration of S. 3297. Our colleagues at the ALS Association (ALSA) have been doing tremendous work to pass the Act and we applaud them in their efforts and understand the importance of supporting this effort - we hope that you will join in the campaign!
The Senate still may return to the issue at a later date, so the fight is NOT over. ALSA is working with Senate Majority Leader Harry Reid (D-NV) and supporters in the Senate to find other opportunities to pass the Act as soon as possible.
Next Steps
There is still an opportunity to pass S. 3297 and the ALS Registry Act this year, and we need you to help continue the fight. Here are two important things you can do:
1) Please thank your Senators who voted in support of us to advance S. 3297. It is important that our supporters know we appreciate their continued efforts to find a treatment and cure.
2) Hold those Senators who voted against the S. 3297 accountable for their votes. Let them know that it is not acceptable to play politics with the lives of people with ALS.
Sample letters you can send to your Senators are available in the Advocacy Action Center of ALSA's website. When you enter your zip code on the site, the system will automatically generate the appropriate letter either thanking them for their support or holding them accountable for their opposition. Please send these letters to your Senators today and help us send a strong message to the Senate. Click here to go to the Advocacy Action Center to send your letters. Thank you for your ongoing support!
_______________________
Get Involved! Much remains to be achieved and more help is needed to find the answers to the mysteries of ALS. Become a partner in our fight by visiting www.lesturnerals.org or contacting us at 847.679.3311 or [email protected].
Forward email
Update on the ALS Registry Act
By a tally of 52-40, the Senate voted yesterday against proceeding to debate on S. 3297, the Advancing America's Priorities Act, which included the ALS Registry Act. Unfortunately, this is eight votes short of the 60 required for the Senate to begin consideration of S. 3297. Our colleagues at the ALS Association (ALSA) have been doing tremendous work to pass the Act and we applaud them in their efforts and understand the importance of supporting this effort - we hope that you will join in the campaign!
The Senate still may return to the issue at a later date, so the fight is NOT over. ALSA is working with Senate Majority Leader Harry Reid (D-NV) and supporters in the Senate to find other opportunities to pass the Act as soon as possible.
Next Steps
There is still an opportunity to pass S. 3297 and the ALS Registry Act this year, and we need you to help continue the fight. Here are two important things you can do:
1) Please thank your Senators who voted in support of us to advance S. 3297. It is important that our supporters know we appreciate their continued efforts to find a treatment and cure.
2) Hold those Senators who voted against the S. 3297 accountable for their votes. Let them know that it is not acceptable to play politics with the lives of people with ALS.
Sample letters you can send to your Senators are available in the Advocacy Action Center of ALSA's website. When you enter your zip code on the site, the system will automatically generate the appropriate letter either thanking them for their support or holding them accountable for their opposition. Please send these letters to your Senators today and help us send a strong message to the Senate. Click here to go to the Advocacy Action Center to send your letters. Thank you for your ongoing support!
_______________________
Get Involved! Much remains to be achieved and more help is needed to find the answers to the mysteries of ALS. Become a partner in our fight by visiting www.lesturnerals.org or contacting us at 847.679.3311 or [email protected].
Forward email