skydog
Member
- Joined
- Sep 9, 2008
- Messages
- 13
- Reason
- Loved one DX
- Country
- US
- State
- Florida
- City
- Jacksonville
Hi guys
I posted about three weeks ago regarding my anxiety about the fasiculations occuring over all parts of my body. I saw a GP who prescribed some anxiety meds and have since had an MRI. Appt with a neuro coming soon. I am a 31 year old male.
Unfortunately the symptoms keep progressing - I've noticed atrophy in both forearms and shoulders. My hands and fingers still work reasonably well - well enough to play guitar and type on the keyboard pretty fluently. Lots of new cracking sound in my joints, as well. My neck is always tired.
I've also experienced some difficulty swallowing - tongue feels sort of thick and fat. Although (no pun attended) if I have a couple drinks, it kinds of feels looser and more relaxed. On top of that I haven't had a full night sleep in about two weeks. Getting about two or three hours at most; the rest I'm awake staring at the window. At first thought it was anxiety and now realize it's due to a lack of oxygen entering my lungs possibly from a weakend diaphragm. I always slept on my stomach - now I'm sleeping with several pillows propped behind me. I'd go get a bi-pap but my fiancee would freak.
In retrospect the symptoms started about 6 months ago with fatigue, tightness in legs and sore lower back - which I ignored as rotuine soreness from running and working - about a month ago the fasiculations arrived and my life changed as I was plunged into the world of ALS. My parents and fiancee are terrified. I think I'm past despair. Especially since I've started thinking that I accidentally and stupidly inflected this on myself with the use of a recreational drug at a party several months ago...Like I was the unwitting author of my demise not knowing enough about "ecstasy" to tie it to this disease which I wasn't thinking about a few months ago.
So, does this progression seem unusually fast? I understand each person has a different progression time. I just want to make it to June 6 (wedding date) standing on my own two feet! Or a walker if necessary....
I posted about three weeks ago regarding my anxiety about the fasiculations occuring over all parts of my body. I saw a GP who prescribed some anxiety meds and have since had an MRI. Appt with a neuro coming soon. I am a 31 year old male.
Unfortunately the symptoms keep progressing - I've noticed atrophy in both forearms and shoulders. My hands and fingers still work reasonably well - well enough to play guitar and type on the keyboard pretty fluently. Lots of new cracking sound in my joints, as well. My neck is always tired.
I've also experienced some difficulty swallowing - tongue feels sort of thick and fat. Although (no pun attended) if I have a couple drinks, it kinds of feels looser and more relaxed. On top of that I haven't had a full night sleep in about two weeks. Getting about two or three hours at most; the rest I'm awake staring at the window. At first thought it was anxiety and now realize it's due to a lack of oxygen entering my lungs possibly from a weakend diaphragm. I always slept on my stomach - now I'm sleeping with several pillows propped behind me. I'd go get a bi-pap but my fiancee would freak.
In retrospect the symptoms started about 6 months ago with fatigue, tightness in legs and sore lower back - which I ignored as rotuine soreness from running and working - about a month ago the fasiculations arrived and my life changed as I was plunged into the world of ALS. My parents and fiancee are terrified. I think I'm past despair. Especially since I've started thinking that I accidentally and stupidly inflected this on myself with the use of a recreational drug at a party several months ago...Like I was the unwitting author of my demise not knowing enough about "ecstasy" to tie it to this disease which I wasn't thinking about a few months ago.
So, does this progression seem unusually fast? I understand each person has a different progression time. I just want to make it to June 6 (wedding date) standing on my own two feet! Or a walker if necessary....