sdsyd
Distinguished member
- Joined
- May 22, 2008
- Messages
- 329
- Country
- US
- State
- sd
- City
- piedmont
What a few weeks it has been! Allergic reaction to baclofen causing brochiospams, controlled quickly with steroids and albuterol. Dr. says my lungs still sound really crummy.
Dan came with me to Dr. today and no results from 2 MG panels. Maybe they were sent to Egypt? Labs from hospital visit show I am still macrocytic in RBC's? Begin trialling valium tonight for cramps in hands/feet. Have not worked in over a week. She is letting me try work Wed and Thurs. this week, but feels we need to consider quitting due to the progression and that my neuro will better help me pursue this. She will call with MG results. The Mayo never gave her the ppwk, so we brought it along for her to copy and again- right across the top it says reason for referral: Suspect Motor Neuron Disease
To recap: Went to Mayo and were dismissed rather quickly with a Dx of B-12 deficiency and left hand dysfunction of uknown etiology. Came home- hopeful and pushed it to the max. Cleaning like a maniac and began hking with my dog, etc etc. Then symptoms worsened greatly. Now unable to drive stick shift, lift a gallon of milk or walk long distances without problems. I have fallen twice while squatting to get things out of the cupboard- on and on. Sorry.... More waiting, more hoping. More trying to keep life as normal as possible here for my loving husband and 3 awesome kids.
and SICK AND TIRED of having to talk about this, deal with it. WANT THE OLD SILLY ME BACK AGAIN!
LOVE YA ALLS!
Cindy
Dan came with me to Dr. today and no results from 2 MG panels. Maybe they were sent to Egypt? Labs from hospital visit show I am still macrocytic in RBC's? Begin trialling valium tonight for cramps in hands/feet. Have not worked in over a week. She is letting me try work Wed and Thurs. this week, but feels we need to consider quitting due to the progression and that my neuro will better help me pursue this. She will call with MG results. The Mayo never gave her the ppwk, so we brought it along for her to copy and again- right across the top it says reason for referral: Suspect Motor Neuron Disease
To recap: Went to Mayo and were dismissed rather quickly with a Dx of B-12 deficiency and left hand dysfunction of uknown etiology. Came home- hopeful and pushed it to the max. Cleaning like a maniac and began hking with my dog, etc etc. Then symptoms worsened greatly. Now unable to drive stick shift, lift a gallon of milk or walk long distances without problems. I have fallen twice while squatting to get things out of the cupboard- on and on. Sorry.... More waiting, more hoping. More trying to keep life as normal as possible here for my loving husband and 3 awesome kids.
and SICK AND TIRED of having to talk about this, deal with it. WANT THE OLD SILLY ME BACK AGAIN!
LOVE YA ALLS!
Cindy