Scared33
Member
- Joined
- Mar 19, 2015
- Messages
- 18
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Oakland
I have been here before, although it has been months since my last post. I have been doing well on anti-anxiety meds, but it has been a year since onset of my "symptoms" and some new things have presented since then.
As a reminder this started one year ago with left hand/arm pain and writing issues. Not that I couldn't write, but my handwriting got super sloppy and I started to have to try very very hard to write nicely. This has remained unchanged but has not gotten worse.
Other symptoms included:
- Body wide twitching (has mostly stopped but still comes and goes)
-Muscle Pain (all over)
- Perceived atrophy (Doctor did not acknowledge as atrophy)
I had and EMG and NCS in my arms and all was normal
Recently I have noted the following
-Constant throat clearing, and phlegm in my throat (I saw in a post somewhere that this was an inset symptom for bulbar)
-The other day I was walking down the street carrying my (tantruming) toddler and a bag of Mexican food. The sidewalk was uneven and I fell, hard. I have never in my life fallen like this before. A few days later I was running up an escalator and I stumbled a tiny bit and my left glute got a cramp in it. Again, never happened before.
- hard time enunciating certain consonants (m, n, ng. Sometimes b, and d). No one has mentioned that I sound like I am slurring, but I am super sensitive to my speech and i feel like I am.
I can walk on my toes and my heels. As a matter of fact there is really nothing that I can't do. My left hand feel weaker than my right (i am left hand dominant and in a very writing intensive job).
So now for my questions: is it typical for something like MND/ALS to just kind of linger for a solid year with no progression? And would it hop around to different parts of my body like it has been? As I am reading this I am thing probably no, but I was hoping for further input.
As a reminder this started one year ago with left hand/arm pain and writing issues. Not that I couldn't write, but my handwriting got super sloppy and I started to have to try very very hard to write nicely. This has remained unchanged but has not gotten worse.
Other symptoms included:
- Body wide twitching (has mostly stopped but still comes and goes)
-Muscle Pain (all over)
- Perceived atrophy (Doctor did not acknowledge as atrophy)
I had and EMG and NCS in my arms and all was normal
Recently I have noted the following
-Constant throat clearing, and phlegm in my throat (I saw in a post somewhere that this was an inset symptom for bulbar)
-The other day I was walking down the street carrying my (tantruming) toddler and a bag of Mexican food. The sidewalk was uneven and I fell, hard. I have never in my life fallen like this before. A few days later I was running up an escalator and I stumbled a tiny bit and my left glute got a cramp in it. Again, never happened before.
- hard time enunciating certain consonants (m, n, ng. Sometimes b, and d). No one has mentioned that I sound like I am slurring, but I am super sensitive to my speech and i feel like I am.
I can walk on my toes and my heels. As a matter of fact there is really nothing that I can't do. My left hand feel weaker than my right (i am left hand dominant and in a very writing intensive job).
So now for my questions: is it typical for something like MND/ALS to just kind of linger for a solid year with no progression? And would it hop around to different parts of my body like it has been? As I am reading this I am thing probably no, but I was hoping for further input.